关键词: Community-based acquired brain injury experience participant perspectives qualitative

来  源:   DOI:10.1080/09638288.2024.2383398

Abstract:
UNASSIGNED: Acquired brain injury (ABI) community support programs aim to help support long-term needs through informational and psychosocial support. Due to the COVID-19 pandemic, many support programs adopted virtual program delivery. However, the experiences of facilitators and people with ABI who participate in virtual support programs are understudied. This study aimed to describe the experiences of people with ABI and program facilitators participating in virtual ABI community support programs.
UNASSIGNED: This was a qualitative descriptive study. Semi-structured interviews were conducted with people with ABI and program facilitators who participated in virtual ABI community support programs. Data were analyzed using inductive thematic analysis.
UNASSIGNED: In total, 16 participants were included in this study. Of the 16 participants, 14 were people with ABI (three of whom were also program facilitators) and two were program facilitators without ABI. Our analysis generated three themes including perceived benefits (theme 1), perceived challenges (theme 2), and considerations to improve program quality (theme 3). Each theme outlines subthemes relaying the experiences of participants.
UNASSIGNED: These findings highlight the need for stakeholders to implement guidelines and training for program facilitators and attendees of virtual ABI support programs to maximize accessibility, usability, inclusivity and safety.IMPLICATIONS FOR REHABILITATIONThis study described the experiences of people with acquired brain injury and facilitators who participated in virtual support programs.Benefits of virtual support programs include connecting with peers, increased access to resources, and enhanced feasibility and accessibility.Difficulties with virtual support programs include intrapersonal (e.g., increased side effects), interpersonal (e.g., communication barriers), and environmental and contextual (e.g., privacy concerns) challenges.Suggestions to improve program quality include creating a safe and respectful environment, fostering engagement and managing challenging situations, and enhancing accessibility and inclusivity.
摘要:
获得性脑损伤(ABI)社区支持计划旨在通过信息和社会心理支持来帮助支持长期需求。由于COVID-19大流行,许多支持程序采用虚拟程序交付。然而,参与虚拟支持计划的主持人和ABI患者的经验未得到充分研究。这项研究旨在描述ABI患者和参与虚拟ABI社区支持计划的计划促进者的经历。
这是一项定性的描述性研究。与ABI人员和参与虚拟ABI社区支持计划的计划主持人进行了半结构化访谈。采用归纳主题分析法对数据进行分析。
总共,16名参与者被纳入本研究。在16名参与者中,14人是ABI患者(其中3人也是项目主持人),2人是没有ABI的项目主持人。我们的分析产生了三个主题,包括感知收益(主题1),感知的挑战(主题2),以及提高节目质量的考虑(主题3)。每个主题都概述了传达参与者经验的子主题。
这些发现强调了利益相关者需要为计划主持人和虚拟ABI支持计划的参与者实施指南和培训,以最大程度地提高可访问性,可用性,包容性和安全性。对康复的影响本研究描述了患有获得性脑损伤的人和参与虚拟支持计划的促进者的经历。虚拟支持计划的好处包括与对等方连接,增加对资源的访问,并增强了可行性和可及性。虚拟支持计划的困难包括内部人(例如,副作用增加),人际关系(例如,沟通障碍),以及环境和上下文(例如,隐私问题)挑战。改善计划质量的建议包括创造一个安全和尊重的环境,促进参与和管理具有挑战性的情况,并增强可达性和包容性。
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