PDF(Pubmed)
Abstract：
Background/Objectives: Burden Syndrome, also known as Caregiver Syndrome, particularly affects those who serve in the role of informal caregiver in the presence of family members with conditions. The ABCX dual model examines the impact on the caregiver of the diagnosis of autism spectrum disorder (ASD) on the family. This model considers the severity of the stressor (A), the additional demands of life stress (aA), the family\'s internal resources (B), the family\'s external resources (bB), the family\'s assessment of the situation (C), coping strategies (cC), and outcome (X). The purpose of the present study is to investigate the relationships between resilience, guilt, and burden of care in caregivers of children with ASD. Methods: Various assessment instruments were used, including the \"Caregiver Burden Inventory\" to measure burden, the \"Brief Resilience Scale\" to assess resilience, the \"Guilt Sensitivity Questionnaire\" to examine guilt sensitivity, and the \"DA.L.I.A.\" to collect information on parent and child characteristics. A total of 80 parents/caregivers participated in the research, including 53 women (Age M = 41.72; SD = 7.8) and 27 men (Age M = 43.35; SD = 6.29). Results: The findings indicate that individuals\' resilience to stressful events correlates negatively with burden, a developmental subtype. However, guilt seems not to play a significant role in the overall perception of burden. In contrast, it was found that the use of informal supports is associated with higher levels of guilt and emotional burden, whereas the use of formal supports is correlated with higher emotional burden, but not higher perceptions of guilt. Conclusions: This study provides important information about the support needed by caregivers and suggests how to address emotional burdens to prevent burnout and support families with children with ASD.
摘要：
背景/目标：负担综合征，也被称为照顾者综合症，特别影响那些在有条件的家庭成员在场的情况下担任非正式照顾者的人。ABCX双重模型检查了自闭症谱系障碍（ASD）诊断对家庭的照顾者的影响。该模型考虑了压力源(A)的严重程度，生活压力的额外需求(aA)，家庭的内部资源(B)，家庭的外部资源(BB)，家庭对情况的评估(C)，应对策略(cC)，和结果（X）。本研究的目的是调查韧性之间的关系，内疚，内疚以及ASD儿童护理人员的护理负担。方法：使用各种评估工具，包括“照顾者负担清单”来衡量负担，评估弹性的“简短弹性量表”，“内疚敏感度问卷”来检查内疚敏感度，和\"DA.L.I.A.\"收集有关父母和孩子特征的信息。共有80名家长/照顾者参与研究,包括53名女性（年龄M=41.72；SD=7.8）和27名男性（年龄M=43.35；SD=6.29）。结果：研究结果表明，个体对压力事件的复原力与负担呈负相关，发育亚型。然而,负罪感似乎在整体的负担感知中没有发挥重要作用。相比之下,人们发现，使用非正式的支持与更高的负罪感和情感负担有关，而正式支持的使用与更高的情感负担相关，但不是更高的内疚感。结论：这项研究提供了有关护理人员所需支持的重要信息，并建议如何解决情感负担，以防止倦怠并支持患有ASD儿童的家庭。
