PDF(Pubmed)
Abstract：
The factors influencing caregivers\' understanding of pediatric respiratory diseases, such as bronchiolitis, can guide patient care and the acceptability of treatment methods within the healthcare system. This study aims to identify illness perceptions and perform a needs assessment among caregivers of children diagnosed with respiratory diseases. This is a prospective, cross-sectional, questionnaire-driven study of a representative sample of caregivers whose children had an acute respiratory illness. The telephone-administered questionnaire was comprised of (1) demographic items; (2) illness perception questionnaire-revised (IPQ-R); and (3) items about personal barriers, the latter 2 of which employed a 5-point Likert response. Cronbach\'s alpha (α) was used to measure the internal consistency reliability for each item within the IPQ-R. The Pearson 2-tailed correlation coefficient was used to correlate questionnaire items. We included 75 caregivers whose children have been diagnosed with bronchiolitis (51%), reactive airway disease (RAD) (35%), asthma (33%), and wheezing (44%). We found no significance between the child\'s diagnosis and the site of recruitment. The most important components of the illness perception were illness coherence (α=0.849), psychological attributions (α=0.903), and barriers to diagnosis (α=0.633). Understanding caregivers\' perceptions of respiratory diseases will lead to better treatment acceptance. We must clarify the terms used to define bronchiolitis from viral-induced wheezing, RAD, and the first asthma episode in older infants. Identifying caregivers\' gaps in knowledge will help establish a cohesive approach to personalized treatment of respiratory diseases in children and their diagnosis.
摘要：
影响护理人员对儿科呼吸系统疾病的理解的因素，比如毛细支气管炎,可以指导患者护理和医疗保健系统内治疗方法的可接受性。这项研究旨在确定被诊断患有呼吸系统疾病的儿童的照顾者对疾病的看法并进行需求评估。这是一个潜在的，横截面,对儿童患有急性呼吸道疾病的护理人员的代表性样本进行问卷驱动的研究。电话问卷包括（1）人口统计项目；（2）疾病感知问卷修订（IPQ-R）；（3）有关个人障碍的项目，后两个采用了5点李克特的反应。Cronbach的α（α）用于测量IPQ-R中每个项目的内部一致性可靠性。采用Pearson2尾相关系数对问卷项目进行关联。我们包括75名儿童被诊断患有毛细支气管炎（51％）的护理人员，反应性气道疾病（RAD）（35%），哮喘（33%），喘息（44%）。我们发现儿童的诊断和招募地点之间没有意义。疾病感知的最重要组成部分是疾病一致性（α=0.849），心理归因(α=0.903)，和诊断障碍(α=0.633)。了解护理人员对呼吸系统疾病的看法将导致更好的治疗接受度。我们必须澄清用于从病毒引起的喘息中定义细支气管炎的术语，RAD,以及年龄较大的婴儿的首次哮喘发作。确定护理人员的知识差距将有助于建立一个有凝聚力的方法来个性化治疗儿童呼吸道疾病及其诊断。
