Abstract:
In the Pakistani/British Pakistani community in England it is quite common for people to marry close cousin relatives, which can increase the chances of certain genetic problems in their children. Families in these situations often have little knowledge of genetics and encounter difficulties accessing genetic counselling services and culturally appropriate genetics information is needed to support these families. We describe the co-design of a prototype culturally sensitive smart phone app with the British Pakistani community, to improve understanding of genetics and genetic services.
摘要:
在英国的巴基斯坦/英国巴基斯坦社区,人们与近亲结婚是很常见的,这会增加孩子出现某些遗传问题的机会。在这些情况下,家庭往往对遗传学知之甚少,难以获得遗传咨询服务,需要文化上适当的遗传学信息来支持这些家庭。我们描述了与英国巴基斯坦社区共同设计的原型文化敏感智能手机应用程序,提高对遗传学和遗传服务的理解。