PDF(Pubmed)
Abstract：
OBJECTIVE: This scoping review aimed to identify and critically appraise resources for health professionals to identify, diagnose, refer, and support individuals with fetal alcohol spectrum disorder (FASD)-including the extent to which the resources are appropriate for use in communities with First Nations Peoples.
METHODS: Seven peer-reviewed databases (April 2022) and 14 grey literature websites (August 2022) were searched. The reference lists of all sources that underwent full-text review were handsearched, and FASD experts were consulted for additional sources. Resources were assessed using the Appraisal of Guidelines for REsearch and Evaluation II instrument and an adapted version of the National Health and Medical Research Council FORM Framework and iCAHE Guideline Quality Checklist.
RESULTS: A total of 41 resources underwent data extraction and critical appraisal, as screening and/or diagnosis guidelines were excluded because they are covered in other reviews. Most were recently published or updated (n=24), developed in the USA (n=15, 36.6%) or Australia (n=12, 29.3%) and assisted with FASD patient referral or support (n=40). Most management guidelines scored 76%-100% on overall quality assessment (n=5/9) and were recommended for use in the Australian context with modifications (n=7/9). Most of the guides (n=15/22) and factsheets (n=7/10) received a \'good\' overall score. Few (n=3/41) resources were explicitly designed for or with input from First Nations Australians.
CONCLUSIONS: High-quality resources are available to support health professionals providing referrals and support to individuals with FASD, including language guides. Resources should be codesigned with people living with FASD to capture and integrate their knowledge and preferences.
METHODS: Seven peer-reviewed databases (April 2022) and 14 grey literature websites (August 2022) were searched. The reference lists of all sources that underwent full-text review were handsearched, and FASD experts were consulted for additional sources. Resources were assessed using the Appraisal of Guidelines for REsearch and Evaluation II instrument and an adapted version of the National Health and Medical Research Council FORM Framework and iCAHE Guideline Quality Checklist.
RESULTS: A total of 41 resources underwent data extraction and critical appraisal, as screening and/or diagnosis guidelines were excluded because they are covered in other reviews. Most were recently published or updated (n=24), developed in the USA (n=15, 36.6%) or Australia (n=12, 29.3%) and assisted with FASD patient referral or support (n=40). Most management guidelines scored 76%-100% on overall quality assessment (n=5/9) and were recommended for use in the Australian context with modifications (n=7/9). Most of the guides (n=15/22) and factsheets (n=7/10) received a \'good\' overall score. Few (n=3/41) resources were explicitly designed for or with input from First Nations Australians.
CONCLUSIONS: High-quality resources are available to support health professionals providing referrals and support to individuals with FASD, including language guides. Resources should be codesigned with people living with FASD to capture and integrate their knowledge and preferences.
摘要：
目的：本范围审查旨在确定和严格评估卫生专业人员的资源，诊断,参考，并支持患有胎儿酒精谱系障碍（FASD）的个人-包括资源在多大程度上适合用于有第一民族人民的社区。
方法：检索了7个同行评审数据库（2022年4月）和14个灰色文献网站（2022年8月）。手工搜索了所有经过全文审查的来源的参考列表，并向FASD专家咨询其他来源。使用评估和评估指南II工具以及国家健康与医学研究委员会表格框架和iCAHE指南质量清单的改编版本对资源进行了评估。
结果：总共对41个资源进行了数据提取和批判性评估，因为筛查和/或诊断指南被排除,因为它们在其他综述中被涵盖.大多数是最近发布或更新的(n=24)，在美国（n=15，36.6％）或澳大利亚（n=12，29.3％）开发，并协助FASD患者转诊或支持（n=40）。大多数管理指南在总体质量评估中得分为76％-100％（n=5/9），并建议在澳大利亚进行修改（n=7/9）。大多数指南（n=15/22）和概况介绍（n=7/10）获得了“良好”的总分。很少（n=3/41）资源是明确为原住民澳大利亚人设计的或由他们提供的。
结论：优质资源可用于支持卫生专业人员为FASD患者提供转诊和支持，包括语言指南。应与FASD的居民共同设计资源，以获取和整合他们的知识和偏好。
方法：检索了7个同行评审数据库（2022年4月）和14个灰色文献网站（2022年8月）。手工搜索了所有经过全文审查的来源的参考列表，并向FASD专家咨询其他来源。使用评估和评估指南II工具以及国家健康与医学研究委员会表格框架和iCAHE指南质量清单的改编版本对资源进行了评估。
结果：总共对41个资源进行了数据提取和批判性评估，因为筛查和/或诊断指南被排除,因为它们在其他综述中被涵盖.大多数是最近发布或更新的(n=24)，在美国（n=15，36.6％）或澳大利亚（n=12，29.3％）开发，并协助FASD患者转诊或支持（n=40）。大多数管理指南在总体质量评估中得分为76％-100％（n=5/9），并建议在澳大利亚进行修改（n=7/9）。大多数指南（n=15/22）和概况介绍（n=7/10）获得了“良好”的总分。很少（n=3/41）资源是明确为原住民澳大利亚人设计的或由他们提供的。
结论：优质资源可用于支持卫生专业人员为FASD患者提供转诊和支持，包括语言指南。应与FASD的居民共同设计资源，以获取和整合他们的知识和偏好。
