Abstract:
Children with disabilities and their families have the right to access Early Childhood Intervention (ECI). Family members should act as active agents of the intervention. In this sense, service professionals should offer support and intervention to improve family well-being and child development. We analyzed the experiences of parents of children with disabilities users of ECI services and the professional coordinators in the Balearic Islands (Spain) from a phenomenological-hermeneutic approach. Data collection was through semi-structured interviews and focus groups. A total of 5 coordinators and 30 family members participated in the study. The results indicate five categories: making ECI visible, reception phase, family well-being, intervention, and current barriers. The findings project the need to make ECI visible in policies and administrations, as well as plans to raise social awareness of child disability. Protocols must be found to facilitate access to services for children and families. Implications for the improvement of ECI are proposed.
摘要:
残疾儿童及其家庭有权获得早期儿童干预(ECI)。家庭成员应作为干预的积极代理人。在这个意义上,服务专业人员应提供支持和干预,以改善家庭福祉和儿童发展。我们从现象学诠释学的方法分析了ECI服务的残疾儿童的父母和巴利阿里群岛(西班牙)的专业协调员的经验。数据收集是通过半结构化访谈和焦点小组进行的。共有5名协调员和30名家庭成员参加了这项研究。结果表明五类:使ECI可见,接收阶段,家庭福祉,干预,目前的障碍。调查结果预测,有必要使ECI在政策和管理中可见,以及提高社会对儿童残疾认识的计划。必须找到协议,以便利儿童和家庭获得服务。提出了改进ECI的启示。