Abstract：
UNASSIGNED: We evaluated the effectiveness of an online activity-focussed programme to decrease fatigue in people with prior Guillain-Barré Syndrome and explored the perspectives of participants regarding the acceptability and feasibility of the programme.
UNASSIGNED: We recruited eight people diagnosed with Guillain-Barré Syndrome more than two years previously who still had fatigue limiting daily activity. We used mixed methods with a replicated single system design using repeated outcome measures across the three phases (baseline, intervention, follow-up) to evaluate the impact of the intervention on fatigue, activity, wellbeing and confidence to exercise. We used qualitative interviews to explore participants\' perspectives of the programme.
UNASSIGNED: All participants developed a personalized plan to manage fatigue using goals and feedback, which was effective in reducing fatigue for most participants. Participants were positive about what they had learnt about fatigue, themselves and strategies to manage fatigue. Some participants also experienced improvements in activity, exercise confidence and health and wellbeing. Not all changes were sustained past the follow-up period, which reflects participants\' differing levels of confidence to continue with their plan.
UNASSIGNED: Graduated physical activity in association with developing a personalised plan were key features effective in managing fatigue after Guillain-Barré Syndrome.
Carefully graded activity can improve fatigue for people with Guillain-Barré Syndrome.Telehealth is a useful medium for delivering a fatigue management programme as it removes the need to travel and improves access for those who live remotely.Collaboratively developing a fatigue management programme that is individualized to a person’s context is probable to contribute to their sense of ownership and likelihood to sustain the plan.Although people may have the skills and knowledge to set goals, use feedback and change their plan, many appreciate the accountability they perceive from ongoing sessions for fatigue management.
UNASSIGNED: We recruited eight people diagnosed with Guillain-Barré Syndrome more than two years previously who still had fatigue limiting daily activity. We used mixed methods with a replicated single system design using repeated outcome measures across the three phases (baseline, intervention, follow-up) to evaluate the impact of the intervention on fatigue, activity, wellbeing and confidence to exercise. We used qualitative interviews to explore participants\' perspectives of the programme.
UNASSIGNED: All participants developed a personalized plan to manage fatigue using goals and feedback, which was effective in reducing fatigue for most participants. Participants were positive about what they had learnt about fatigue, themselves and strategies to manage fatigue. Some participants also experienced improvements in activity, exercise confidence and health and wellbeing. Not all changes were sustained past the follow-up period, which reflects participants\' differing levels of confidence to continue with their plan.
UNASSIGNED: Graduated physical activity in association with developing a personalised plan were key features effective in managing fatigue after Guillain-Barré Syndrome.
Carefully graded activity can improve fatigue for people with Guillain-Barré Syndrome.Telehealth is a useful medium for delivering a fatigue management programme as it removes the need to travel and improves access for those who live remotely.Collaboratively developing a fatigue management programme that is individualized to a person’s context is probable to contribute to their sense of ownership and likelihood to sustain the plan.Although people may have the skills and knowledge to set goals, use feedback and change their plan, many appreciate the accountability they perceive from ongoing sessions for fatigue management.
摘要：
■我们评估了以在线活动为重点的计划的有效性，以减少先前患有格林-巴利综合症的人的疲劳，并探讨了参与者对该计划的可接受性和可行性的看法。
■我们招募了8名两年前被诊断为格林-巴利综合征的人，他们仍然有疲劳限制日常活动。我们使用混合方法和重复的单系统设计，在三个阶段使用重复的结果测量(基线，干预，随访)以评估干预对疲劳的影响，活动,健康和锻炼的信心。我们使用定性访谈来探索参与者对该计划的看法。
■所有参与者都制定了个性化计划，以使用目标和反馈来管理疲劳，这对减轻大多数参与者的疲劳是有效的。参与者对他们所学到的关于疲劳的知识持积极态度，自己和管理疲劳的策略。一些参与者也经历了活动的改善，锻炼信心和健康幸福。并非所有的变化都持续到了后续阶段，这反映了参与者对继续他们的计划的不同程度的信心。
■与制定个性化计划相关的毕业体力活动是格林-巴利综合征后有效管理疲劳的关键特征。
仔细分级的活动可以改善格林-巴利综合征患者的疲劳。远程医疗是提供疲劳管理计划的有用媒介，因为它消除了旅行的需要，并改善了远程居住的人的访问。合作开发一个针对个人环境个性化的疲劳管理计划可能有助于他们的主人翁感和维持计划的可能性。尽管人们可能具有设定目标的技能和知识，使用反馈并改变他们的计划，许多人欣赏他们从正在进行的疲劳管理会议中感受到的责任。
■我们招募了8名两年前被诊断为格林-巴利综合征的人，他们仍然有疲劳限制日常活动。我们使用混合方法和重复的单系统设计，在三个阶段使用重复的结果测量(基线，干预，随访)以评估干预对疲劳的影响，活动,健康和锻炼的信心。我们使用定性访谈来探索参与者对该计划的看法。
■所有参与者都制定了个性化计划，以使用目标和反馈来管理疲劳，这对减轻大多数参与者的疲劳是有效的。参与者对他们所学到的关于疲劳的知识持积极态度，自己和管理疲劳的策略。一些参与者也经历了活动的改善，锻炼信心和健康幸福。并非所有的变化都持续到了后续阶段，这反映了参与者对继续他们的计划的不同程度的信心。
■与制定个性化计划相关的毕业体力活动是格林-巴利综合征后有效管理疲劳的关键特征。
仔细分级的活动可以改善格林-巴利综合征患者的疲劳。远程医疗是提供疲劳管理计划的有用媒介，因为它消除了旅行的需要，并改善了远程居住的人的访问。合作开发一个针对个人环境个性化的疲劳管理计划可能有助于他们的主人翁感和维持计划的可能性。尽管人们可能具有设定目标的技能和知识，使用反馈并改变他们的计划，许多人欣赏他们从正在进行的疲劳管理会议中感受到的责任。
