PDF(Pubmed)
Abstract：
Background: Cerebral palsy (CP) is the most common physical disability among children, affecting their lifespan. While CP is typically nonprogressive, symptoms can worsen over time. With advancements in healthcare, more children with CP are reaching adulthood, creating a greater demand for adult care. However, a significant lack of adult healthcare providers exists, as CP is predominantly considered a pediatric condition. This study compares the transition experiences of children with CP compared to those with other developmental disabilities (DDs) and typically developing children (TDC). Methods: This study utilizes cross-sectional data from the National Survey of Children\'s Health (NSCH) from 2016-2020, including 71,973 respondents aged 12-17. Children were categorized into three groups: CP (n = 263), DD (n = 9460), and TDC (n = 36,053). The analysis focused on the receipt of transition services and identified demographic and socioeconomic factors influencing these services. Results: Only 9.7% of children with CP received necessary transition services, compared to 19.7% of children with DDs and 19.0% of TDC. Older age, female sex, non-Hispanic white ethnicity, and higher household income were significant predictors of receiving transition services. Children with CP were less likely to have private time with healthcare providers and receive skills development assistance compared to other groups. Conclusions: The findings highlight disparities and critical needs for targeted interventions and structured transition programs to improve the transition from pediatric to adult healthcare for children with CP. Addressing disparities in service receipt and ensuring coordinated, continuous care are essential for improving outcomes for children with CP.
摘要：
背景：脑瘫（CP）是儿童中最常见的身体残疾，影响他们的寿命。虽然CP通常是非渐进的，症状会随着时间的推移而恶化。随着医疗保健的进步，更多的CP儿童成年，对成人护理产生了更大的需求。然而,严重缺乏成人医疗保健提供者，因为CP主要被认为是儿科疾病。这项研究比较了患有CP的儿童与其他发育障碍（DDs）和通常发育中的儿童（TDC）的过渡经历。方法：本研究利用2016-2020年全国儿童健康调查（NSCH）的横断面数据，包括71,973名12-17岁的受访者。儿童分为三组：CP（n=263），DD（n=9460），和TDC(n=36,053)。分析的重点是获得过渡服务，并确定了影响这些服务的人口和社会经济因素。结果：只有9.7％的CP儿童获得了必要的过渡服务，相比之下，有DDs的儿童占19.7%，TDC占19.0%。年纪大了,女性性别,非西班牙裔白人种族,和较高的家庭收入是获得过渡服务的重要预测因素。与其他群体相比，患有CP的儿童不太可能与医疗保健提供者有私人时间并获得技能发展援助。结论：研究结果强调了针对性干预措施和结构化过渡计划的差异和关键需求，以改善CP儿童从儿科到成人医疗保健的过渡。解决服务接收方面的差距，并确保协调，持续护理对于改善CP患儿的预后至关重要.
