PDF(Pubmed)
Abstract：
This systematic literature review examines the evidence base on the effectiveness of online programmes on the mental health and well-being of family carers of people with intellectual disabilities. Databases (ERIC, Medline, PsycINFO and CINAHL) were searched for intervention studies that considered online interventions for family carers of people with intellectual disabilities. Data were extracted using standardised data extraction tools. Bias was assessed using the Cochrane risk of bias tool for randomised trials (RoB 2). Screening, extraction and assessment of bias were completed independently by two members of the research team. Given the low number of included studies and different outcomes assessed within them, it was not possible to conduct a meta-analysis; therefore, data are presented narratively. Two studies met the criteria to be included in the review. Both studies utilised a feasibility randomised controlled trial methodology. One study found a significant decrease in parental stress, while the other found a significant increase in psychological well-being. Caution must be taken in drawing firm conclusions, given the small sample sizes and low retention rates in both studies. Online programmes seem to offer potential benefits to family carers of people with intellectual disabilities. However, further investigation is needed to examine these programmes, adopting a collaborative approach with family carers.
摘要：
这项系统的文献综述研究了有关在线计划对智障人士的家庭照顾者的心理健康和福祉的有效性的证据。数据库(ERIC，Medline,搜索PsycINFO和CINAHL）的干预研究，这些研究考虑了针对智障人士的家庭护理人员的在线干预措施。使用标准化数据提取工具提取数据。使用Cochrane偏倚风险工具对随机试验(RoB2)进行偏倚评估。筛选,偏见的提取和评估由研究小组的两名成员独立完成.鉴于纳入研究的数量较少，并且其中评估的结果不同，不可能进行荟萃分析；因此，数据以叙述方式呈现。两项研究符合纳入审查的标准。两项研究均采用可行性随机对照试验方法。一项研究发现父母的压力显着下降，而另一个发现心理健康显着增加。在得出坚定的结论时必须谨慎，鉴于两项研究的样本量小，保留率低。在线计划似乎为智障人士的家庭照顾者提供了潜在的好处。然而,需要进一步调查以检查这些计划，采取与家庭照顾者合作的方式。
