Abstract：
OBJECTIVE: To explore the perspectives of cerebral palsy (CP) experts on access to healthcare and an analysis of socioeconomic and environmental determinants impacting young individuals with CP in Europe.
METHODS: Cross-sectional survey designed by a convenience multi-disciplinary panel of invited experts and completed by clinicians, researchers and opinions leaders in the field of CP.
RESULTS: Fifty-eight experts (response rate 85 %) from 39 regions in 26 European countries completed the survey. All countries provide care and financing through public systems. Long waiting lists were reported (mean 3 mo, range 1-12 mo), depending on type of specialist care and place of residence. Although diagnostic and therapeutic services were available, access within countries/regions were unevenly distributed, with children receiving better care than adults. Most experts reported a lack of transition services, although improvement is expected (62 % of responses). Hip and malnutrition surveillance, as well as educational and recreational activities were variably available. Public transportation, accessible roads and pavements, and urban green spaces for persons with disabilities were more available in larger cities. Overall, only 57 % of responders felt that most patients had adequate access to healthcare.
CONCLUSIONS: The survey of CP experts\' perspectives from the majority of European countries indicates discrepancies in the availability and accessibility of healthcare needed by people with CP and nonuniform implementation of policies across Europe.
METHODS: Cross-sectional survey designed by a convenience multi-disciplinary panel of invited experts and completed by clinicians, researchers and opinions leaders in the field of CP.
RESULTS: Fifty-eight experts (response rate 85 %) from 39 regions in 26 European countries completed the survey. All countries provide care and financing through public systems. Long waiting lists were reported (mean 3 mo, range 1-12 mo), depending on type of specialist care and place of residence. Although diagnostic and therapeutic services were available, access within countries/regions were unevenly distributed, with children receiving better care than adults. Most experts reported a lack of transition services, although improvement is expected (62 % of responses). Hip and malnutrition surveillance, as well as educational and recreational activities were variably available. Public transportation, accessible roads and pavements, and urban green spaces for persons with disabilities were more available in larger cities. Overall, only 57 % of responders felt that most patients had adequate access to healthcare.
CONCLUSIONS: The survey of CP experts\' perspectives from the majority of European countries indicates discrepancies in the availability and accessibility of healthcare needed by people with CP and nonuniform implementation of policies across Europe.
摘要：
目的：探讨脑瘫（CP）专家在获得医疗保健方面的观点，以及对影响欧洲CP年轻人的社会经济和环境决定因素的分析。
方法：由受邀专家组成的便利多学科小组设计并由临床医生完成的横断面调查，CP领域的研究人员和意见领袖。
结果：来自26个欧洲国家39个地区的58位专家（回复率为85%）完成了调查。所有国家都通过公共系统提供护理和融资。报告了很长的等待名单(平均3个月，范围1-12个月)，取决于专科护理的类型和居住地。尽管有诊断和治疗服务，国家/地区内部的访问分配不均，儿童比成人得到更好的照顾。大多数专家报告缺乏过渡服务，虽然改善预期（62%的反应）。髋关节和营养不良监测，以及教育和娱乐活动都有不同的选择。公共交通,无障碍道路和人行道，在大城市，残疾人的城市绿地更多。总的来说,只有57%的应答者认为大多数患者能够充分获得医疗保健.
结论：来自大多数欧洲国家的CP专家的观点调查表明，在整个欧洲，CP人群所需的医疗保健的可用性和可及性存在差异，并且政策实施不统一。
方法：由受邀专家组成的便利多学科小组设计并由临床医生完成的横断面调查，CP领域的研究人员和意见领袖。
结果：来自26个欧洲国家39个地区的58位专家（回复率为85%）完成了调查。所有国家都通过公共系统提供护理和融资。报告了很长的等待名单(平均3个月，范围1-12个月)，取决于专科护理的类型和居住地。尽管有诊断和治疗服务，国家/地区内部的访问分配不均，儿童比成人得到更好的照顾。大多数专家报告缺乏过渡服务，虽然改善预期（62%的反应）。髋关节和营养不良监测，以及教育和娱乐活动都有不同的选择。公共交通,无障碍道路和人行道，在大城市，残疾人的城市绿地更多。总的来说,只有57%的应答者认为大多数患者能够充分获得医疗保健.
结论：来自大多数欧洲国家的CP专家的观点调查表明，在整个欧洲，CP人群所需的医疗保健的可用性和可及性存在差异，并且政策实施不统一。
