UNASSIGNED: We used interview data from a multimethod UK study exploring the effects of ageing with CP and healthcare across the life course. Twenty-six participants were recruited and interviewed using various digital platforms to maximise inclusive participation in the UK. Follow-up email semi-structured interviews were conducted to further explore experiences of falls. Transcribed interviews were analysed thematically.
UNASSIGNED: Falling and fear of falling (FoF) is problematic for over half of the participants in the sample. They perceived falls and FoF as limiting their participation, autonomy and independence in employment, social and cultural activities. Participants used their own management strategies, due to limited specialist interventions or practitioner knowledge to manage or prevent falls. Practices, such as the use of a wheelchair or avoiding activities prompted changes to relationships and identity.
UNASSIGNED: Falling for adults with CP happens earlier in life compared to the general population. Adults with CP may benefit from specialist falls prevention services to help maintain muscle strength and balance. Research is needed to evaluate effective interventions for people with CP.
Falling negatively impacts on the lives and identities of people with cerebral palsy, including younger adults.In other areas such as services for older people, or those who have experienced stroke, rehabilitation services have helped people reduce falls rates through maintaining strength and balance.Falls prevention rehabilitation services are needed for people with cerebral palsy and should include relevant mobility devices and assistive technologies while maintaining social participation and quality of life.
■我们使用了来自英国一项多方法研究的访谈数据,探索了衰老与CP和医疗保健在整个生命过程中的影响。使用各种数字平台招募和采访了26名参与者,以最大限度地提高英国的包容性参与。进行了后续电子邮件半结构化访谈,以进一步探索跌倒的经历。转录访谈进行了主题分析。
■跌倒和对跌倒的恐惧(FoF)对于样本中超过一半的参与者来说是有问题的。他们认为跌倒和FAF限制了他们的参与,就业的自主性和独立性,社会和文化活动。参与者使用他们自己的管理策略,由于管理或预防跌倒的专家干预或医生知识有限。实践,例如使用轮椅或避免活动促使关系和身份的改变。
■与普通人群相比,患有CP的成年人在生命中更早。患有CP的成年人可能会受益于专业的跌倒预防服务,以帮助维持肌肉力量和平衡。需要研究来评估对CP患者的有效干预措施。
下降对脑瘫患者的生活和身份产生负面影响,包括年轻的成年人。在其他领域,例如为老年人提供服务,或者那些经历过中风的人,康复服务通过保持力量和平衡来帮助人们降低跌倒率。脑瘫患者需要预防跌倒康复服务,应包括相关的移动设备和辅助技术,同时保持社会参与和生活质量。