关键词: HRQOL adolescent family environment kidney transplantation social support

Mesh : Humans Quality of Life Adolescent Kidney Transplantation / psychology Social Support Male Female Kidney Failure, Chronic / surgery psychology Surveys and Questionnaires Family / psychology Child Family Relations

来  源:   DOI:10.1111/petr.14824

Abstract:
BACKGROUND: Kidney transplantation is the treatment of choice for pediatric end-stage renal disease. Transplant recipients often have better neurocognitive, academic, and health-related outcomes. While there is some evidence that health-related quality of life (HRQOL) improves following kidney transplant, other studies have found adolescent transplant recipients report lower overall HRQOL than healthy peers. Current research has focused on individual-level factors affecting adjustment to organ transplant, warranting examination of HRQOL from a systems perspective. Family environment and social support contribute to a system of proximal relationships that are crucial in adolescents\' development, making them important factors to study in relation to HRQOL post-transplant.
METHODS: The current study utilized archival data of adolescent renal transplant patients who completed surveys about their family environment, social support, and HRQOL during routine transplant clinic visits.
RESULTS: Family cohesion, as well as social support from parents, classmates, and people in school, were positively correlated with HRQOL. Social support from people in school uniquely predicted variance in HRQOL, beyond the contribution of overall family environment after controlling for demographic factors. Relative to comparable adolescent samples, transplant recipients reported more optimal overall family environment, greater social support from teachers, and lower social support from close friends.
CONCLUSIONS: Psychosocial interventions for adolescent kidney transplant recipients may be enhanced by collaborating with school professionals and further bolstering strengths in the family environment. Kidney transplant recipients may benefit from long-term intervention, as decreased HRQOL appears to persist years post-transplant.
摘要:
背景:肾移植是治疗小儿终末期肾病的首选方法。移植接受者通常有更好的神经认知能力,学术,和健康相关的结果。虽然有一些证据表明肾移植后与健康相关的生活质量(HRQOL)有所改善,其他研究发现,青少年移植受者报告的整体HRQOL低于健康同龄人.目前的研究集中在影响器官移植调整的个体水平因素上,保证从系统的角度检查HRQOL。家庭环境和社会支持有助于建立一个对青少年发展至关重要的近端关系系统,使它们成为移植后HRQOL相关研究的重要因素。
方法:本研究利用了完成家庭环境调查的青少年肾移植患者的档案数据,社会支持,和HRQOL在常规移植诊所就诊期间。
结果:家庭凝聚力,以及父母的社会支持,同学们,和学校里的人,与HRQOL呈正相关。来自在校人员的社会支持唯一预测了HRQOL的方差,在控制人口因素后,超出了整体家庭环境的贡献。相对于可比的青少年样本,移植接受者报告了更优化的整体家庭环境,更多来自教师的社会支持,和较低的社会支持从亲密的朋友。
结论:通过与学校专业人员合作并进一步增强家庭环境中的优势,可以加强对青少年肾移植受者的心理社会干预。肾移植受者可能受益于长期干预,由于减少的HRQOL似乎在移植后持续数年。
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