关键词: Community engagement HIV Health literacy Hepatitis B virus Liver disease Public engagement South Africa Stigma

来  源:   DOI:10.1016/j.jve.2024.100378   PDF(Pubmed)

Abstract:
UNASSIGNED: The World Health Organisation (WHO) has set targets for the elimination of Hepatitis B virus (HBV), which include preventing new infections and reducing deaths. We explored beliefs, behaviours and barriers to diagnosis, prevention and treatment for people living with HBV infection (PLWHB) and those with liver disease in a rural South African population in KwaZulu-Natal, to gather information to inform research and support the development of improved clinical and public health services.
UNASSIGNED: Using an interdisciplinary approach (combining public engagement, social science, clinical and laboratory team members) we conducted a community dialogue with members of the Africa Health Research Institute (AHRI) Community Advisory Board (CAB). Notes from the discussions were used to write up an account from which themes were identified during a team debrief session for data analysis.
UNASSIGNED: There was a lack of knowledge and awareness of HBV infection and transmission and prevention amongst CAB members, also reported among community members and healthcare workers. The participants recognised liver disease symptoms. Perceived causes of liver disease reported by the CAB were alcohol and non-adherence to HIV treatment. Barriers to care included stigma, poverty, and delays in referrals for HBV diagnosis and management.
UNASSIGNED: Understanding barriers to care is important to shape future services for diagnosis, treatment and prevention of HBV and liver disease which are accessible, affordable and acceptable to the local population. Education, awareness and advocacy for improved liver health care pathways are required to make them effective for local communities.
摘要:
世界卫生组织(WHO)设定了消除乙型肝炎病毒(HBV)的目标,其中包括预防新的感染和减少死亡。我们探索了信仰,诊断的行为和障碍,在夸祖鲁-纳塔尔省的南非农村人口中,对HBV感染(PLWHB)和肝病患者的预防和治疗,收集信息,为研究提供信息,并支持改进的临床和公共卫生服务的发展。
使用跨学科方法(结合公众参与,社会科学,临床和实验室团队成员)我们与非洲健康研究所(AHRI)社区咨询委员会(CAB)的成员进行了社区对话。讨论中的注释用于编写一个帐户,在团队汇报会议中确定了主题以进行数据分析。
CAB成员缺乏对HBV感染,传播和预防的知识和认识,社区成员和医护人员中也有报道。参与者认识到肝脏疾病症状。CAB报告的肝病的感知原因是酒精和不坚持HIV治疗。护理障碍包括耻辱,贫穷,和延迟转诊的HBV诊断和管理。
了解护理障碍对于塑造未来的诊断服务很重要,HBV和肝脏疾病的治疗和预防,为当地居民负担得起和接受。教育,需要提高对肝脏保健途径的认识和倡导,以使其对当地社区有效.
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