Abstract:
Some children with autism spectrum disorder (ASD) experience seizures and associated staring episodes, loss of consciousness, weakened muscle tone, and myoclonic jerking. Data recording of seizure frequency, duration, and co-occurring behavior is necessary to document the effects of anti-epileptic medications, identify contextual influences on seizure expression, and differentiate seizures from other movement disorders. We describe the design and operation of a computer-assisted system for recording seizures among children with ASD in a social validity study that revealed uniform approval and acceptance of the system from practitioners, clinicians, and nurse (N = 22), parents (N = 11), and neurologists (N = 7). The objectives and benefits of targeting the social validity of technology-based seizure tracking are discussed are discussed.
摘要:
一些患有自闭症谱系障碍(ASD)的儿童会出现癫痫发作和相关的凝视发作,失去意识,肌肉张力减弱,和肌阵挛性抽搐。癫痫发作频率的数据记录,持续时间,同时发生的行为对于记录抗癫痫药物的效果是必要的,确定上下文对癫痫发作表达的影响,并将癫痫发作与其他运动障碍区分开来。我们在一项社会有效性研究中描述了用于记录ASD儿童癫痫发作的计算机辅助系统的设计和操作,该研究揭示了从业者对该系统的统一认可和接受,临床医生,和护士(N=22),父母(N=11),和神经学家(N=7)。讨论了以基于技术的癫痫发作跟踪的社会有效性为目标的目标和好处。