METHODS: Patients with IBD at a tertiary hospital answered a questionnaire on the presence of 54 IMIDs (self-reported diagnosis), and their IMID diagnosis was confirmed in their medical records (reference diagnosis). Agreement between the self-reported IMID and the IMID according to medical records was evaluated. The association between concordance and different predictors was evaluated using logistic regression models.
RESULTS: A total of 1,620 patients were included. Six hundred and twenty-six (39%) patients were diagnosed with at least one IMID, and 177 (11%) with two or more. Overall agreement between patients´ self-report and medical records was k:0.61. When we grouped IMIDs according to affected organs or systems, agreement on rheumatic IMIDs was moderate (k:0.58), whereas agreement on cutaneous (k:0.66), endocrine (k: 0.74) and ocular (k:0.73) IMIDs was substantial. Among patients who had IMIDs, the factor associated with greater concordance was female gender, while lower concordance was associated with a lower educational level and the fact that the IMID had been diagnosed at the same time or later than IBD.
CONCLUSIONS: The knowledge that patients with IBD have regarding the coexistence of other IMIDs is poor, especially in rheumatic IMIDs.
方法:三级医院的IBD患者回答了关于存在54个IMID(自我报告诊断)的问卷,他们的IMID诊断在他们的医疗记录中得到证实(参考诊断).评估了自我报告的IMID与根据医疗记录的IMID之间的协议。使用逻辑回归模型评估一致性与不同预测因子之间的关联。
结果:共纳入1,620例患者。六百二十六(39%)患者被诊断出至少一种IMID,和177(11%)两个或更多。患者自我报告和医疗记录之间的总体一致性为k:0.61。当我们根据受影响的器官或系统对IMID进行分组时,关于风湿性IMID的协议是中等的(k:0.58),而皮肤协议(k:0.66),内分泌(k:0.74)和眼(k:0.73)IMID是实质性的。在患有IMID的患者中,与更大的一致性相关的因素是女性,而较低的一致性与较低的教育水平以及IMID同时或晚于IBD被诊断的事实相关。
结论:IBD患者对其他IMID共存的认识不足,尤其是在风湿性IMID中。