关键词: India children family carers intellectual disabilities quality of care

Mesh : Humans Intellectual Disability Caregivers / psychology India Child Qualitative Research Adult Family / psychology

来  源:   DOI:10.1111/jar.13269

Abstract:
BACKGROUND: India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India.
METHODS: A qualitative evidence synthesis was undertaken, searching databases such as MEDLINE, CINAHL, Web of Science, and PsycInfo up to October 2023. Grey literature was also searched for unpublished studies, with two reviewers assessing methodological quality. Eleven eligible studies, mostly qualitative in design, were included in the review. The data synthesis followed a thematic approach.
RESULTS: The synthesis found five themes representing family carers\' experiences and perspectives. These were \'resilience and acceptance\', \'parental response\', \'care dynamic\', \'preparing for transition to adulthood\' and \'parental advocacy\'.
CONCLUSIONS: Family carers hold diverse views, while almost all consider providing care complex and challenging, with few positive experiences.
摘要:
背景:印度的智障人士患病率很高。尽管他们的患病率较高,他们得到的支持很差。因此,本综述旨在探讨印度家庭照顾者为智障儿童提供照顾的经验.
方法:进行了定性证据综合,搜索数据库,如MEDLINE,CINAHL,WebofScience,以及截至2023年10月的PsycInfo。灰色文献也搜索了未发表的研究,由两名审稿人评估方法学质量。11项符合条件的研究,主要是定性的设计,包括在审查中。数据综合遵循专题方法。
结果:综合发现了代表家庭照顾者的经验和观点的五个主题。这些是“韧性和接受度”,\'父母回应\',\'护理动态\',\“准备过渡到成年\”和\“父母的倡导”。
结论:家庭照顾者持有不同的观点,虽然几乎所有人都认为提供复杂而具有挑战性的护理,很少有积极的经验。
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