Abstract：
OBJECTIVE: Youth living with HIV (YLHIV) in the southern United States experience poor outcomes across the HIV care continuum and are at high-risk for virologic failure. This study used a qualitative, community-engaged approach to inform the development of a tailored mobile Health (mHealth) tool for YLHIV in South Carolina (SC).
METHODS: Semistructured qualitative interviews were conducted with YLHIV in SC (n = 16) and their HIV care providers (n = 15). Focus group discussions (FGDs) were also conducted with HIV-focused community-based organization staff (n = 23). Interviews and FGDs queried desired components for a future mHealth tool tailored for YLHIV. Data were analyzed using a team-based rapid qualitative approach.
RESULTS: Across informants, key themes emerged related to medical management of HIV, including a desire for connections with medical providers, appointment and medication reminders, and accurate HIV information. In addition, informants voiced a desire for mental health resources to be integrated into the app. Connection with HIV-positive peers also emerged as a key desire from youth informants. In terms of app design, informants emphasized the need for strict privacy practices, a youth-friendly design, compensation for use, and integration with existing healthcare systems.
CONCLUSIONS: mHealth interventions developed for YLHIV should meet the mental health and social needs of YLHIV in addition to their medical needs. In addition, the highly stigmatized nature of HIV requires careful consideration when designing digital tools-youth want their privacy prioritized, but also express strong desire for social support to help cope with the isolation and stigma of this chronic health condition.
METHODS: Semistructured qualitative interviews were conducted with YLHIV in SC (n = 16) and their HIV care providers (n = 15). Focus group discussions (FGDs) were also conducted with HIV-focused community-based organization staff (n = 23). Interviews and FGDs queried desired components for a future mHealth tool tailored for YLHIV. Data were analyzed using a team-based rapid qualitative approach.
RESULTS: Across informants, key themes emerged related to medical management of HIV, including a desire for connections with medical providers, appointment and medication reminders, and accurate HIV information. In addition, informants voiced a desire for mental health resources to be integrated into the app. Connection with HIV-positive peers also emerged as a key desire from youth informants. In terms of app design, informants emphasized the need for strict privacy practices, a youth-friendly design, compensation for use, and integration with existing healthcare systems.
CONCLUSIONS: mHealth interventions developed for YLHIV should meet the mental health and social needs of YLHIV in addition to their medical needs. In addition, the highly stigmatized nature of HIV requires careful consideration when designing digital tools-youth want their privacy prioritized, but also express strong desire for social support to help cope with the isolation and stigma of this chronic health condition.
摘要：
目标：在美国南部，感染HIV（YLHIV）的青年在整个HIV护理连续过程中结局不佳，并且处于病毒学失败的高风险中。这项研究采用了一种定性的，社区参与的方法，为南卡罗来纳州（SC）的YLHIV量身定制的移动健康（mHealth）工具的开发提供信息。
方法：对SC（n=16）及其HIV护理提供者（n=15）的YLHIV进行了半结构化定性访谈。还与以艾滋病毒为重点的社区组织工作人员（n=23）进行了焦点小组讨论（FGD）。访谈和FGD查询了为YLHIV量身定制的未来mHealth工具的所需组件。使用基于团队的快速定性方法分析数据。
结果：所有线人，出现了与艾滋病毒医疗管理相关的关键主题，包括与医疗提供者联系的愿望，预约和用药提醒，和准确的艾滋病毒信息。此外,线人表示希望将心理健康资源整合到应用程序中。与艾滋病毒阳性同龄人的联系也成为青年线人的主要愿望。在APP设计方面,线人强调需要严格的隐私惯例，对年轻人友好的设计，使用补偿，以及与现有医疗保健系统的整合。
结论：针对YLHIV开发的mHealth干预措施除了满足医疗需求外，还应满足YLHIV的心理健康和社会需求。此外,在设计数字工具时，艾滋病毒的高度污名化性质需要仔细考虑——年轻人希望他们的隐私得到优先考虑，但也表达了对社会支持的强烈愿望，以帮助应对这种慢性健康状况的孤立和耻辱。
方法：对SC（n=16）及其HIV护理提供者（n=15）的YLHIV进行了半结构化定性访谈。还与以艾滋病毒为重点的社区组织工作人员（n=23）进行了焦点小组讨论（FGD）。访谈和FGD查询了为YLHIV量身定制的未来mHealth工具的所需组件。使用基于团队的快速定性方法分析数据。
结果：所有线人，出现了与艾滋病毒医疗管理相关的关键主题，包括与医疗提供者联系的愿望，预约和用药提醒，和准确的艾滋病毒信息。此外,线人表示希望将心理健康资源整合到应用程序中。与艾滋病毒阳性同龄人的联系也成为青年线人的主要愿望。在APP设计方面,线人强调需要严格的隐私惯例，对年轻人友好的设计，使用补偿，以及与现有医疗保健系统的整合。
结论：针对YLHIV开发的mHealth干预措施除了满足医疗需求外，还应满足YLHIV的心理健康和社会需求。此外,在设计数字工具时，艾滋病毒的高度污名化性质需要仔细考虑——年轻人希望他们的隐私得到优先考虑，但也表达了对社会支持的强烈愿望，以帮助应对这种慢性健康状况的孤立和耻辱。
