Abstract：
This consensus document analyzed the management and emotional journey of patients with GPP (generalized pustular psoriasis), and the desirable course of the disease while detecting critical points and translating them into needs and recommendations. This project was conducted in 3 phases with participation from an advisory committee (n=8), an expert panel (n=15) and patients with GPP (n=6). The patients\' disease progression was heterogeneous due to disease variations, different health care models implemented and available resources, and the lack of diagnostic and treatment guidelines. A total of 45 different recommendations have been made to optimize management and address the emotional component of these patients. Five of them stand out for their impact and viability. Therefore, a roadmap of priorities has been made generally available to improve the management of patients with GPP.
摘要：
这份共识文件分析了Gender（广泛性脓疱型银屑病）患者的管理和情绪历程，以及疾病的理想病程，同时检测关键点并将其转化为需求和建议。该项目分三个阶段进行，咨询委员会(n=8)参与，一个专家小组(n=15)和一些患者(n=6)。由于疾病变化，患者的疾病进展是异质的，实施不同的医疗保健模式和可用资源，以及缺乏诊断和治疗指南。总共提出了45种不同的建议，以优化管理并解决这些患者的情绪问题。其中五个因其影响力和生存能力而脱颖而出。因此,已普遍制定了优先事项路线图,以改善对3GPP患者的管理.
