Abstract：
Improving self-management in individuals with inflammatory arthritis (IA) is crucial for effective disease management. However, current recommendations primarily focus on interventions for the diagnosed individuals, overlooking the potential impact of their significant others on their self-management abilities. This review aims to fill this gap by identifying and mapping relevant research employing both qualitative and quantitative design to provide a broader understanding of the potential of significant others in relation to IA management. We examined studies published from 2007 to 2024 that explore our research questions using electronic databases and grey literature searches. Two independent reviewers meticulously screened and categorized the studies based on a developed framework employing basic content analysis. Out of 20.925 studies, 43 were included: 22 quantitative studies (including 1 educational trial), 20 qualitative studies, and 1 mixed-methods study. Our analysis of the included studies revealed that significant others predominantly provided practical and emotional support and could positively or negatively influence the person with IAs self-management abilities. Additionally, significant others reported their own feelings of emotional distress and expressed the need for knowledge, skills and social support enabling them to provide better support while taking care of them self. Greater focus on the significant others of those diagnosed with IA in their provision of support to this patient group may both improve the people with IA self-management skills and address significant others\' reported needs. Future studies should explore the impact of such initiatives through randomized controlled trials.
摘要：
改善炎性关节炎（IA）患者的自我管理对于有效的疾病管理至关重要。然而,目前的建议主要集中在对被诊断个体的干预上，忽视了他们重要的他人对他们自我管理能力的潜在影响。这篇综述旨在通过识别和绘制采用定性和定量设计的相关研究来填补这一空白，以更广泛地了解与IA管理相关的重要其他人的潜力。我们检查了2007年至2024年发表的研究，这些研究使用电子数据库和灰色文献搜索来探索我们的研究问题。两名独立审稿人根据采用基本内容分析的开发框架对研究进行了精心筛选和分类。在20.925项研究中，包括43项：22项定量研究（包括1项教育试验），20项定性研究，和1混合方法研究。我们对纳入研究的分析表明，重要的其他人主要提供实际和情感支持，并且可能对具有IAs自我管理能力的人产生积极或消极影响。此外,重要的其他人报告了他们自己的情绪困扰，并表达了对知识的需求，技能和社会支持使他们能够在照顾自己的同时提供更好的支持。在为该患者组提供支持时，更多地关注被诊断为IA的其他重要患者，可能既可以提高具有IA自我管理技能的人，又可以解决其他报告的重要需求。未来的研究应该通过随机对照试验探索这些举措的影响。
