METHODS: LORD-PPT participants (N = 376) completed a questionnaire assessing socio-demographic and clinical characteristics, risk perception, treatment choice and DCIS knowledge after being informed about their diagnosis and treatment options.
RESULTS: 66 % of participants had poor knowledge (i.e., answered ≤3 out of 7 knowledge items correctly). Most incorrect answers involved overestimating the safety of AS and misunderstanding of DCIS prognostic risks. Overall, women with higher DCIS knowledge score perceived their risk of developing IBC as being somewhat higher than women with poorer knowledge (p = 0.049). Women with better DCIS knowledge more often chose surgery whilst most women with poorer knowledge chose active surveillance (p = 0.049).
CONCLUSIONS: Our findings show that there is room for improvement of information provision to patients. Decision support tools for patients and clinicians could help to stimulate effective shared decision-making about DCIS management.
方法:LORD-PPT参与者(N=376)填写了一份评估社会人口统计学和临床特征的问卷,风险感知,在了解他们的诊断和治疗方案后,治疗选择和DCIS知识。
结果:66%的参与者知识不足(即回答正确≤7条知识项中的3条)。大多数错误的答案涉及高估AS的安全性和对DCIS预后风险的误解。总的来说,DCIS知识得分较高的女性认为其发生IBC的风险略高于知识较差的女性(p=0.049).具有更好的DCIS知识的女性更经常选择手术,而大多数知识较差的女性选择主动监测(p=0.049)。
结论:我们的研究结果表明,向患者提供信息仍有改进的空间。患者和临床医生的决策支持工具可以帮助激发有关DCIS管理的有效共享决策。