关键词: Autism adulthood caregiver family transition

来  源:   DOI:10.1080/09638288.2024.2365415

Abstract:
UNASSIGNED: The transition to adulthood is one of the most challenging and complex processes for autistic youth and their families. Few evidence-based transition support programs exist, and those that have garnered support require long-term commitments and resources that may prohibit participation by families with financial and time limitations. The current study investigated the feasibility and initial promise of a brief, caregiver-focused educational transition program for families of autistic youth delivered in the community over a single day.
UNASSIGNED: Quantitative informant-report and qualitative interview data were collected from 12 caregivers of autistic youth before and after program participation. Using a partially mixed sequential equal status design, quantitative and qualitative data were integrated to evaluate change in caregiver transition knowledge and empowerment, as well as caregivers\' perceptions of program feasibility, acceptability, and usefulness.
UNASSIGNED: Caregivers reported significant increases in knowledge of transition-related topics and sense of empowerment regarding their family life. Caregiver perceptions of the intervention suggest they found it feasible, acceptable, and useful.
UNASSIGNED: Short-term transition programming may be a helpful option for caregivers who seek transition supports for autistic youth.
The transition to adulthood is a stressful and complex process for autistic adolescents and their caregivers.Many caregivers lack time, financial resources, and access to comprehensive transition supports.Brief educational support is a potential alternative for aiding caregivers in planning for and assisting with adolescents’ postsecondary training/education, employment, social, and living arrangements.The Planning for your Loved Ones Future (PLOF) intervention showed promise in improving caregiver knowledge about transition and sense of empowerment, and was described as feasible, accessible, and helpful by those who participated in a pilot study.
摘要:
对于自闭症青年及其家庭来说,向成年过渡是最具挑战性和最复杂的过程之一。很少有基于证据的过渡支持计划存在,那些获得支持的人需要长期承诺和资源,可能会禁止有经济和时间限制的家庭参与。当前的研究调查了一个简短的可行性和初步承诺,以照顾者为中心的自闭症青年家庭教育过渡计划在一天内在社区提供。
在参与计划之前和之后,从12名自闭症青年的照顾者那里收集了定量信息报告和定性访谈数据。使用部分混合顺序等状态设计,整合了定量和定性数据,以评估护理人员过渡知识和赋权的变化,以及护理人员对计划可行性的看法,可接受性,和有用性。
看护者报告说,他们对过渡相关主题的了解和对家庭生活的赋权感显著增加。照顾者对干预的看法表明他们发现这是可行的,可接受,和有用的。
对于寻求自闭症青年过渡支持的护理人员来说,短期过渡计划可能是一个有用的选择。
对于自闭症青少年及其照顾者来说,向成年过渡是一个充满压力和复杂的过程。许多护理人员缺乏时间,财政资源,并获得全面的过渡支持。简短的教育支持是帮助护理人员规划和协助青少年高等教育/教育的潜在替代方案,employment,社会,和生活安排。为您的亲人的未来规划(PLOF)干预在改善护理人员关于过渡和赋权感的知识方面显示出希望,被描述为可行的,可访问,并对参与试点研究的人有所帮助。
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