Abstract：
BACKGROUND: The aging population and increased disability prevalence in Spain have heightened the demand for long-term care. Informal caregiving, primarily performed by women, plays a crucial role in this scenario. This protocol outlines the CUIDAR-SE study, focusing on the gender-specific impact of informal caregiving on health and quality of life among caregivers in Andalusia and the Basque Country from 2013 to 2024.
OBJECTIVE: This study aims to analyze the gender differences in health and quality of life indicators of informal caregivers residing in 2 Spanish autonomous communities (Granada, Andalusia, and Gipuzkoa; Basque Country) and their evolution over time, in relation to the characteristics of caregivers, the caregiving situation, and support received.
METHODS: The CUIDAR-SE study uses a longitudinal, multicenter design across 3 phases, tracking health and quality of life indicators among informal caregivers. Using a questionnaire adapted to the Spanish context that uses validated scales and multilevel analysis, the research captures changes in caregivers\' experiences amid societal crises, notably the 2008 economic crisis and the COVID-19 pandemic. A multistage randomized cluster sampling technique is used to minimize study design effects.
RESULTS: Funding for the CUIDAR-SE study was in 3 phases starting in January 2013, 2017, and 2021, spanning a 10-year period. Data collection commenced in 2013 and continued annually, except for 2016 and 2020 due to financial and pandemic-related challenges. As of March 2024, a total of 1294 participants have been enrolled, with data collection ongoing for 2023. Initial data analysis focused on gender disparities in caregiver health, quality of life, burden, perceived needs, and received support, with results from phase I published. Currently, analysis is ongoing for phases II and III, as well as longitudinal analysis across all phases.
CONCLUSIONS: This protocol aims to provide comprehensive insights into caregiving dynamics and caregivers\' experiences over time, as well as understand the role of caregiving on gender inequality in health, considering regional variations. Despite limitations in participant recruitment, focusing on registered caregivers, the study offers a detailed exploration of the health impacts of caregiving in Spain. The incorporation of a gender perspective and the examination of diverse contextual factors enrich the study\'s depth, contributing significantly to the discourse on caregiving health complexities in Spain.
UNASSIGNED: DERR1-10.2196/58440.
OBJECTIVE: This study aims to analyze the gender differences in health and quality of life indicators of informal caregivers residing in 2 Spanish autonomous communities (Granada, Andalusia, and Gipuzkoa; Basque Country) and their evolution over time, in relation to the characteristics of caregivers, the caregiving situation, and support received.
METHODS: The CUIDAR-SE study uses a longitudinal, multicenter design across 3 phases, tracking health and quality of life indicators among informal caregivers. Using a questionnaire adapted to the Spanish context that uses validated scales and multilevel analysis, the research captures changes in caregivers\' experiences amid societal crises, notably the 2008 economic crisis and the COVID-19 pandemic. A multistage randomized cluster sampling technique is used to minimize study design effects.
RESULTS: Funding for the CUIDAR-SE study was in 3 phases starting in January 2013, 2017, and 2021, spanning a 10-year period. Data collection commenced in 2013 and continued annually, except for 2016 and 2020 due to financial and pandemic-related challenges. As of March 2024, a total of 1294 participants have been enrolled, with data collection ongoing for 2023. Initial data analysis focused on gender disparities in caregiver health, quality of life, burden, perceived needs, and received support, with results from phase I published. Currently, analysis is ongoing for phases II and III, as well as longitudinal analysis across all phases.
CONCLUSIONS: This protocol aims to provide comprehensive insights into caregiving dynamics and caregivers\' experiences over time, as well as understand the role of caregiving on gender inequality in health, considering regional variations. Despite limitations in participant recruitment, focusing on registered caregivers, the study offers a detailed exploration of the health impacts of caregiving in Spain. The incorporation of a gender perspective and the examination of diverse contextual factors enrich the study\'s depth, contributing significantly to the discourse on caregiving health complexities in Spain.
UNASSIGNED: DERR1-10.2196/58440.
摘要：
背景：西班牙人口老龄化和残疾患病率的增加增加了对长期护理的需求。非正式护理，主要由女性表演，在这种情况下发挥着至关重要的作用。该方案概述了CUIDAR-SE研究，重点关注2013年至2024年安达卢西亚和巴斯克地区非正式护理对护理人员健康和生活质量的影响。
目的：本研究旨在分析居住在西班牙2个自治社区的非正式护理人员在健康和生活质量指标方面的性别差异（格拉纳达，安达卢西亚,和Gipuzkoa；巴斯克地区)及其随时间的演变，关于照顾者的特点，护理情况，得到的支持。
方法：CUIDAR-SE研究使用纵向，跨三个阶段的多中心设计，跟踪非正式护理人员的健康和生活质量指标。使用适应西班牙背景的问卷，使用经过验证的量表和多层次分析，这项研究捕捉到了社会危机中护理人员经历的变化，特别是2008年的经济危机和COVID-19大流行。使用多阶段随机整群抽样技术来最大程度地减少研究设计效果。
结果：CUIDAR-SE研究的资金分为3个阶段，从2013年1月，2017年和2021年开始，为期10年。数据收集始于2013年，每年都在继续。除了2016年和2020年，由于金融和大流行相关的挑战。截至2024年3月，共有1294名参与者注册，2023年正在进行数据收集。最初的数据分析侧重于护理人员健康方面的性别差异，生活质量,负担，感知需求，得到了支持,发表了第一阶段的结果。目前,第二阶段和第三阶段的分析正在进行中，以及所有阶段的纵向分析。
结论：该协议旨在提供对护理动态和护理人员经验的全面见解。以及了解护理对健康中性别不平等的作用，考虑区域差异。尽管参与者招募受到限制，专注于注册护理人员，该研究详细探讨了西班牙护理对健康的影响.纳入性别观点和考察不同的背景因素丰富了研究的深度,对西班牙关于护理健康复杂性的论述做出了重大贡献。
■DERR1-10.2196/58440。
目的：本研究旨在分析居住在西班牙2个自治社区的非正式护理人员在健康和生活质量指标方面的性别差异（格拉纳达，安达卢西亚,和Gipuzkoa；巴斯克地区)及其随时间的演变，关于照顾者的特点，护理情况，得到的支持。
方法：CUIDAR-SE研究使用纵向，跨三个阶段的多中心设计，跟踪非正式护理人员的健康和生活质量指标。使用适应西班牙背景的问卷，使用经过验证的量表和多层次分析，这项研究捕捉到了社会危机中护理人员经历的变化，特别是2008年的经济危机和COVID-19大流行。使用多阶段随机整群抽样技术来最大程度地减少研究设计效果。
结果：CUIDAR-SE研究的资金分为3个阶段，从2013年1月，2017年和2021年开始，为期10年。数据收集始于2013年，每年都在继续。除了2016年和2020年，由于金融和大流行相关的挑战。截至2024年3月，共有1294名参与者注册，2023年正在进行数据收集。最初的数据分析侧重于护理人员健康方面的性别差异，生活质量,负担，感知需求，得到了支持,发表了第一阶段的结果。目前,第二阶段和第三阶段的分析正在进行中，以及所有阶段的纵向分析。
结论：该协议旨在提供对护理动态和护理人员经验的全面见解。以及了解护理对健康中性别不平等的作用，考虑区域差异。尽管参与者招募受到限制，专注于注册护理人员，该研究详细探讨了西班牙护理对健康的影响.纳入性别观点和考察不同的背景因素丰富了研究的深度,对西班牙关于护理健康复杂性的论述做出了重大贡献。
■DERR1-10.2196/58440。
