关键词: life course polycystic ovary syndrome systems theory women’s health

来  源:   DOI:10.2147/IJWH.S467737   PDF(Pubmed)

Abstract:
UNASSIGNED: Peri-postmenopausal women with the chronic condition polycystic ovary syndrome (PCOS) remain at cardiometabolic risk and/or subsist with established comorbidity while continuing to manage persistent PCOS signs and symptoms, such as hirsutism. Thus, PCOS transcends the reproductive years, yet there is sparse scientific literature on the peri-postmenopausal years of women with PCOS.
UNASSIGNED: To explore how peri-postmenopausal women\'s perceptions about PCOS have changed over the lifespan since their PCOS diagnosis.
UNASSIGNED: A cross-sectional survey with one qualitative question was conducted via Research Electronic Data Capture (REDCap) among women with PCOS aged ≥43 years, who were all recruited from PCOS-specific Facebook pages. Of the 107 women completing the survey, 72 substantively answered the qualitative question. The qualitative responses were analyzed using the steps of reflexive thematic analysis. Themes were interpreted and discussed through the lens of the bioecological conceptual model.
UNASSIGNED: Respondents were 47.6 (±4.1) years of age, primarily White (87.5%), employed full time (65.3%), and married (75%) with children (68%). Four overall themes were identified: 1) dismissal 2) information desert, 3) PCOS experience over the lifespan, and 4) mindset.
UNASSIGNED: The study findings illustrated the unique healthcare needs among peri-postmenopausal women with PCOS. Further research is needed to further explore their healthcare concerns and psychosocial needs followed by studies that develop and assess interventions that promote symptom and adaptive coping strategies across their lifespan.
摘要:
患有慢性多囊卵巢综合征(PCOS)的围绝经期妇女仍处于心脏代谢风险和/或存在已确定的合并症,同时继续管理持续的PCOS体征和症状,比如多毛症。因此,PCOS超越了生殖年龄,然而,关于PCOS女性围绝经期后年份的科学文献很少.
探讨绝经后妇女对PCOS的认知在PCOS诊断后的生命周期中发生了怎样的变化。
通过研究电子数据捕获(REDCap)对年龄≥43岁的PCOS女性进行了一项具有定性问题的横断面调查,他们都是从PCOS特定的Facebook页面招募的。在完成调查的107名女性中,72实质性回答了定性问题。使用反身性主题分析的步骤对定性响应进行了分析。通过生物生态概念模型的视角对主题进行了解释和讨论。
受访者年龄为47.6(±4.1)岁,主要是白人(87.5%),全职工作(65.3%),已婚(75%)有孩子(68%)。确定了四个总体主题:1)解雇2)信息沙漠,3)PCOS的经验在整个生命周期,4)心态。
研究结果说明了患有PCOS的围绝经期妇女的独特医疗需求。需要进一步的研究来进一步探索他们的医疗保健问题和社会心理需求,然后进行研究,以开发和评估在其整个生命周期中促进症状和适应性应对策略的干预措施。
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