Abstract:
Despite their importance, little is known about how social drivers of health shape communicative outcomes in autism. Even less is known when considering the intersection of race and language impairment. An understanding of factors in communicative outcomes is key for characterizing developmental trajectories and informing supports. This cross-sectional observational study examined the role of social drivers of health in communicative outcomes of racially and ethnically minoritized autistic adolescents and adults. Participants ages 13 to 30 (N = 73) completed a behavioral assessment protocol, including language and nonverbal cognitive skills, as well as social drivers of health (sense of community, unmet services, barriers to services). Correlational analyses revealed associations between social drivers of health on social communication impairment and real-world communication. Generalized linear mixed-effects modeling revealed that language predicted real-world communication, but sense of community predicted social communication impairment. Findings point to the importance of assessing both individual differences and social drivers of health in outcomes in autism research. Future work should focus on social drivers of health in larger-scale analyses of outcomes in minoritized autistic individuals during the transition to adulthood, considering supports that align with service eligibility and person-centered outcomes.
摘要:
尽管它们很重要,关于健康的社会驱动因素如何影响自闭症患者的交流结果,人们知之甚少。在考虑种族和语言障碍的交集时,人们知道的更少。理解交际结果中的因素是表征发展轨迹和提供支持的关键。这项横断面观察性研究研究了健康的社会驱动因素在种族和种族化自闭症青少年和成年人的交流结果中的作用。13至30岁(N=73)的参与者完成了行为评估方案,包括语言和非语言认知能力,以及健康的社会驱动因素(社区意识,未满足的服务,服务壁垒)。相关分析揭示了健康的社会驱动因素与社交障碍之间的关联。广义线性混合效应建模表明,语言预测了现实世界的交流,但是社区意识预测了社会交往障碍。研究结果表明,评估自闭症研究结果中的个体差异和健康的社会驱动因素的重要性。未来的工作应该集中在健康的社会驱动因素上,在向成年过渡的过程中,对少数族裔自闭症患者的结果进行更大规模的分析,考虑与服务资格和以人为本的结果相一致的支持。
■人们居住的地方,工作,花时间很重要。环境可以有更多或更少的服务,或者在帮助人们感觉自己属于社区的程度上有所不同。环境的这些部分被称为健康的社会驱动因素。健康的社会驱动因素对自闭症的结果很重要,但我们不知道他们在种族和少数民族自闭症青少年或成年人。我们招募了73名年龄在13至30岁之间的自闭症青少年和成年人以及52名护理人员(父母,祖父母,兄弟姐妹)到我们的研究。青少年和成年人在Zoom上进行了语言和NVIQ测试。青少年,成年人,护理人员也回答了问卷。社区意识对于社会交往障碍很重要,语言对现实世界的交流很重要。这些发现告诉我们两件事。首先,思考如何为自闭症青少年和成年人创造支持性的沟通环境是很重要的。第二,了解健康塑造结果的社会驱动因素是很重要的。在未来,我们应该关注改善环境如何帮助自闭症青少年和成年人实现他们的沟通目标。