Abstract：
OBJECTIVE: To describe the variations of family members\' conceptions of their supportive care needs (SCN) across the colorectal cancer (CRC) trajectory.
METHODS: A descriptive qualitative study with a phenomenographic approach.
METHODS: Individual semi-structured interviews were conducted from May 2022 to October 2022 with 23 family members of persons diagnosed with colorectal cancer. The interviews were analysed using phenomenographic analysis following the Consolidated criteria for reporting qualitative research (COREQ) checklist.
RESULTS: The phenomenographic analysis resulted in five categories. Not of importance describes family members\' needs as unimportant due to the good prognosis and the organization of care and in relation to the needs of others. Only satisfiable by professionals describes information possessed by the healthcare professionals as key, as well as the need for professional counselling for the family members to process their emotions. Managed by themselves describes family members preferring to manage their SCN themselves by turning to the appropriate social support and/or by using coping skills. Understood retrospectively describes SCN as only understandable when things have calmed down and as requiring one\'s own experience to understand. Left unmet describes SCN as unnoticed by the healthcare professionals or not brought to light by the family members, or family members not knowing where to turn for support.
CONCLUSIONS: Supportive care should involve individualized information, proactive and repeated assessments of needs across the trajectory, as well as encouragement of family members to reflect on their needs and to accept support when needed.
CONCLUSIONS: There is a gap in the literature regarding family members\' SCN across the CRC trajectory which this study addresses. Findings show five categories of family members\' conceptions of their SCN. Those findings could serve as a basis for the development of clinical colorectal supportive care across the cancer trajectory.
UNASSIGNED: Findings show that to offer family members of persons diagnosed with colorectal cancer support only at the time of diagnosis is insufficient. Instead, the healthcare team is recommended to proactively and repeatedly try to identify those in need and the characteristics of their needs. In addition, it is important to offer individualized information and strive to encourage family members to reflect on their situation and to not suppress their own needs if emerging.
UNASSIGNED: Reporting adheres to the consolidated criteria for reporting qualitative research (COREQ) checklist.
UNASSIGNED: No patient or public contribution.
METHODS: A descriptive qualitative study with a phenomenographic approach.
METHODS: Individual semi-structured interviews were conducted from May 2022 to October 2022 with 23 family members of persons diagnosed with colorectal cancer. The interviews were analysed using phenomenographic analysis following the Consolidated criteria for reporting qualitative research (COREQ) checklist.
RESULTS: The phenomenographic analysis resulted in five categories. Not of importance describes family members\' needs as unimportant due to the good prognosis and the organization of care and in relation to the needs of others. Only satisfiable by professionals describes information possessed by the healthcare professionals as key, as well as the need for professional counselling for the family members to process their emotions. Managed by themselves describes family members preferring to manage their SCN themselves by turning to the appropriate social support and/or by using coping skills. Understood retrospectively describes SCN as only understandable when things have calmed down and as requiring one\'s own experience to understand. Left unmet describes SCN as unnoticed by the healthcare professionals or not brought to light by the family members, or family members not knowing where to turn for support.
CONCLUSIONS: Supportive care should involve individualized information, proactive and repeated assessments of needs across the trajectory, as well as encouragement of family members to reflect on their needs and to accept support when needed.
CONCLUSIONS: There is a gap in the literature regarding family members\' SCN across the CRC trajectory which this study addresses. Findings show five categories of family members\' conceptions of their SCN. Those findings could serve as a basis for the development of clinical colorectal supportive care across the cancer trajectory.
UNASSIGNED: Findings show that to offer family members of persons diagnosed with colorectal cancer support only at the time of diagnosis is insufficient. Instead, the healthcare team is recommended to proactively and repeatedly try to identify those in need and the characteristics of their needs. In addition, it is important to offer individualized information and strive to encourage family members to reflect on their situation and to not suppress their own needs if emerging.
UNASSIGNED: Reporting adheres to the consolidated criteria for reporting qualitative research (COREQ) checklist.
UNASSIGNED: No patient or public contribution.
摘要：
目的：描述家庭成员对其支持治疗需求（SCN）的概念在结直肠癌（CRC）轨迹中的变化。
方法：采用现象学方法的描述性定性研究。
方法：从2022年5月至2022年10月，对23名被诊断为结直肠癌患者的家庭成员进行了个人半结构化访谈。根据报告定性研究（COREQ）清单的综合标准，使用现象分析对访谈进行了分析。
结果：现象分析得出五个类别。不重要的是，由于良好的预后和护理的组织以及与他人的需求有关，将家庭成员的需求描述为不重要。只有专业人员满意才能将医疗保健专业人员拥有的信息描述为关键，以及需要为家庭成员提供专业咨询来处理他们的情绪。自己管理描述了家庭成员更喜欢通过转向适当的社会支持和/或使用应对技巧来管理自己的SCN。理解回顾性地将SCN描述为只有当事情平静下来时才可以理解，并且需要自己的经验来理解。LeftUnmet将SCN描述为未被医疗保健专业人员注意到或未被家庭成员曝光，或家庭成员不知道去哪里寻求支持。
结论：支持性护理应涉及个性化信息，对整个轨迹的需求进行主动和重复的评估，以及鼓励家庭成员反思他们的需求，并在需要时接受支持。
结论：关于家庭成员SCN在CRC轨迹上的文献存在差距，这项研究解决了这一问题。调查结果显示了五类家庭成员对SCN的概念。这些发现可以作为整个癌症发展轨迹的临床结直肠支持性护理的基础。
■研究结果表明，仅在诊断时就向被诊断患有结直肠癌的人的家庭成员提供支持是不够的。相反，建议医疗团队积极并反复尝试确定有需要的人及其需求的特征。此外,重要的是提供个性化的信息，并努力鼓励家庭成员反思自己的情况，不要压制自己的需求。
■报告遵循报告定性研究（COREQ）清单的综合标准。
■没有患者或公众捐款。
方法：采用现象学方法的描述性定性研究。
方法：从2022年5月至2022年10月，对23名被诊断为结直肠癌患者的家庭成员进行了个人半结构化访谈。根据报告定性研究（COREQ）清单的综合标准，使用现象分析对访谈进行了分析。
结果：现象分析得出五个类别。不重要的是，由于良好的预后和护理的组织以及与他人的需求有关，将家庭成员的需求描述为不重要。只有专业人员满意才能将医疗保健专业人员拥有的信息描述为关键，以及需要为家庭成员提供专业咨询来处理他们的情绪。自己管理描述了家庭成员更喜欢通过转向适当的社会支持和/或使用应对技巧来管理自己的SCN。理解回顾性地将SCN描述为只有当事情平静下来时才可以理解，并且需要自己的经验来理解。LeftUnmet将SCN描述为未被医疗保健专业人员注意到或未被家庭成员曝光，或家庭成员不知道去哪里寻求支持。
结论：支持性护理应涉及个性化信息，对整个轨迹的需求进行主动和重复的评估，以及鼓励家庭成员反思他们的需求，并在需要时接受支持。
结论：关于家庭成员SCN在CRC轨迹上的文献存在差距，这项研究解决了这一问题。调查结果显示了五类家庭成员对SCN的概念。这些发现可以作为整个癌症发展轨迹的临床结直肠支持性护理的基础。
■研究结果表明，仅在诊断时就向被诊断患有结直肠癌的人的家庭成员提供支持是不够的。相反，建议医疗团队积极并反复尝试确定有需要的人及其需求的特征。此外,重要的是提供个性化的信息，并努力鼓励家庭成员反思自己的情况，不要压制自己的需求。
■报告遵循报告定性研究（COREQ）清单的综合标准。
■没有患者或公众捐款。
