PDF(Pubmed)
Abstract：
Patients with heart failure have difficulty recognizing and identifying changes in bodily sensations, despite the importance of symptom monitoring. The way patients with heart failure experience their bodies from exacerbation to recovery is poorly understood. We aimed to describe the lived bodily experience of heart failure from exacerbation to recovery. Participatory observations and interviews were conducted in seven patients admitted to the intensive care unit with worsening heart failure. Benner\'s interpretive phenomenology was used for analysis. Four major themes were identified: a non-functional body becomes the central concern and an object; being conscious of bodily changes before hospitalization when asked; the central concern shifted to daily life and the body becomes the background; and having a feeling of death in the body that no longer functions or a weakened body after recovery. This study found that patients with heart failure were conscious and concerned about their bodies changing as they underwent rapid changes during exacerbations and recovery. In addition, immediately after their bodies recovered and until they were discharged from the hospital, they looked toward their daily lives through their bodily experiences during heart failure exacerbation. The lived bodily experience of heart failure, which is less conscious in daily life, is made conscious through storytelling in the period immediately following recovery from an acute exacerbation and can be the basis for subsequent self-care exploration.
摘要：
心力衰竭患者很难识别和识别身体感觉的变化，尽管症状监测很重要。人们对心力衰竭患者从恶化到恢复的身体体验方式知之甚少。我们旨在描述从恶化到恢复的心力衰竭的生活身体体验。对7例心力衰竭恶化的重症监护病房患者进行了参与式观察和访谈。本纳的解释现象学被用于分析。确定了四个主要主题：无功能的身体成为关注的中心和对象；在被要求住院之前意识到身体的变化；中心关注转移到日常生活，身体成为背景；并且在身体中具有死亡的感觉，不再起作用或恢复后身体虚弱。这项研究发现，心力衰竭患者在恶化和康复过程中经历了快速变化，因此意识清醒并担心自己的身体变化。此外,他们的身体康复后，直到他们出院，他们通过心力衰竭恶化期间的身体经历来看待他们的日常生活。心力衰竭的身体体验，在日常生活中缺乏意识，在从急性加重中恢复后的这段时期内，通过讲故事使其有意识，并且可以成为随后的自我保健探索的基础。
