关键词: Latvia caregivers complex health needs family caregivers quality of life

Mesh : Humans Caregivers / psychology Latvia Female Male Middle Aged Aged Family / psychology Adaptation, Psychological Social Support Interviews as Topic Adult Quality of Life Qualitative Research Social Stigma Long-Term Care

来  源:   DOI:10.1093/heapro/daae070

Abstract:
The article examines the experiences of family caregivers engaged in the provision of long-term care for their relatives with complex health needs within the Latvian context. Semi-structured interviews were conducted with seven caregivers who provide care in cases of dementia, depression, schizophrenia, opioid use, Down syndrome and mild cognitive impairment. A thematic analysis of interview transcripts revealed common themes, such as the initial experiences when encountering a family member\'s disorder and the subsequent reactions, as well as the quest for support and resources. Variations mainly centered around differences in formal aspects and childhood experiences of care. Caregivers reported risk factors such as guilt, lack of support from family and friends, financial difficulties, deficiency of professional care and ignoring the caregiver\'s own needs. Awareness of personal resources, values and limits, coping with personal stigma and improved overall quality of life were identified as protective factors. The findings underscore several preventive measures that social and mental health services could implement to mitigate the adverse effects of caregiving on caregivers\' lives.
摘要:
本文研究了在拉脱维亚背景下为有复杂健康需求的亲戚提供长期护理的家庭护理人员的经验。对7名护理人员进行了半结构化访谈,他们在痴呆症病例中提供护理,抑郁症,精神分裂症,阿片类药物的使用,唐氏综合征和轻度认知障碍。访谈笔录的主题分析揭示了共同的主题,如最初的经历,当遇到一个家庭成员的障碍和随后的反应,以及寻求支持和资源。差异主要集中在形式方面和儿童护理经验的差异。看护者报告的风险因素,如内疚,缺乏家人和朋友的支持,财政困难,缺乏专业护理,忽视了护理人员自身的需求。对个人资源的认识,值和限制,应对个人污名和改善整体生活质量被确定为保护因素.研究结果强调了社会和精神卫生服务可以实施的几项预防措施,以减轻护理对护理人员生活的不利影响。
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