关键词: dementia dementia strategy diagnosis lived experience post-diagnostic support public health rarer dementias rural

Mesh : Humans Dementia / diagnosis Wales Aged Male Female Aged, 80 and over Middle Aged Surveys and Questionnaires Caregivers / psychology

来  源:   DOI:10.3390/ijerph21060709   PDF(Pubmed)

Abstract:
National dementia strategies are government policies that guide the provision of appropriate support for people living with dementia. These strategies, developed through extensive stakeholder engagement, should be tailored to the cultural and demographic needs of a country. Using a mixed methods survey design, this study explored the aims of the Dementia Action Plan (2018-2022) for Wales (UK) around assessment, diagnosis, and post-diagnostic support, and assessed whether these are being realized. Further, it sought to gain insight from people living with dementia and their carers around how the experience may be improved for others in the future, as the development of the next iteration of the Action Plan is anticipated. Respondents included 71 people, affected by typical and rarer types of dementia, living in both rural and urban areas. Findings suggest both positive and negative experiences, reflecting a \'postcode lottery\' of service provision. Attainable recommendations for improvement were made by respondents, which would ultimately likely be cost-effective and reduce strain on formal services. The findings reported in this paper concur with those reported by people living with dementia in other countries, indicating their relevance for policymakers beyond Wales.
摘要:
国家痴呆症战略是指导为痴呆症患者提供适当支持的政府政策。这些策略,通过广泛的利益相关者参与开发,应该适合一个国家的文化和人口需求。采用混合方法进行调查设计,这项研究探讨了威尔士(英国)痴呆症行动计划(2018-2022)的目标,诊断,和诊断后支持,并评估这些是否正在实现。Further,它试图从痴呆症患者及其照顾者那里获得关于未来如何改善他人体验的洞察力,预计下一次行动计划的发展。受访者包括71人,受典型和罕见类型的痴呆症影响,生活在农村和城市地区。研究结果表明,积极和消极的经验,反映服务提供的“邮政编码彩票”。受访者提出了可实现的改进建议,这最终可能具有成本效益,并减轻正式服务的压力。本文报道的发现与其他国家痴呆症患者的报道一致,表明它们与威尔士以外的决策者的相关性。
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