Abstract：
BACKGROUND: Multiple sclerosis (MS), because of its early age at onset, greatly impacts the working lives of those affected by it in ways linked to different factors, both professional and personal. It has been observed that only a small percentage (20-40%) of workers with MS retain their jobs after the diagnosis. When identifying factors determining job retention or loss in this setting, it is essential to consider the direct perspectives of people with MS (PwMS).
METHODS: A qualitative study, based on the conduction of two focus groups, was conducted to explore the personal experiences of PwMS who work.
RESULTS: The results show that there are numerous factors, both positive and negative, that can influence these people\'s ability to retain their jobs. The climate established in the workplace and the relationship between workers with MS and their colleagues were fundamentally important aspects, as was knowledge of the disease at the level of public opinion.
CONCLUSIONS: Managing work is a complex undertaking for people with a disabling condition like MS. There needs to be greater awareness of the employment rights of PwMS. Improving these knowledge-based aspects could undoubtedly improve the quality of the working lives of PwM.
METHODS: A qualitative study, based on the conduction of two focus groups, was conducted to explore the personal experiences of PwMS who work.
RESULTS: The results show that there are numerous factors, both positive and negative, that can influence these people\'s ability to retain their jobs. The climate established in the workplace and the relationship between workers with MS and their colleagues were fundamentally important aspects, as was knowledge of the disease at the level of public opinion.
CONCLUSIONS: Managing work is a complex undertaking for people with a disabling condition like MS. There needs to be greater awareness of the employment rights of PwMS. Improving these knowledge-based aspects could undoubtedly improve the quality of the working lives of PwM.
摘要：
背景：多发性硬化症（MS），因为它的发病年龄较早，以与不同因素相关的方式极大地影响受其影响的人的工作生活，专业和个人。据观察，只有一小部分（20-40％）的MS工人在诊断后保留工作。在此设置中确定决定工作保留或损失的因素时，必须考虑MS(PwMS)患者的直接观点。
方法：定性研究，基于两个焦点小组的传导，进行了探索工作的PwMS的个人经历。
结果：结果表明，因素众多，积极和消极的，这会影响这些人保住工作的能力。在工作场所建立的氛围以及工人与MS及其同事之间的关系是至关重要的方面，公众舆论层面对这种疾病的了解也是如此。
结论：管理工作对于患有MS等残疾疾病的人来说是一项复杂的工作。需要提高对PwMS就业权的认识。改善这些基于知识的方面无疑可以提高PwM的工作生活质量。
方法：定性研究，基于两个焦点小组的传导，进行了探索工作的PwMS的个人经历。
结果：结果表明，因素众多，积极和消极的，这会影响这些人保住工作的能力。在工作场所建立的氛围以及工人与MS及其同事之间的关系是至关重要的方面，公众舆论层面对这种疾病的了解也是如此。
结论：管理工作对于患有MS等残疾疾病的人来说是一项复杂的工作。需要提高对PwMS就业权的认识。改善这些基于知识的方面无疑可以提高PwM的工作生活质量。
