PDF(Pubmed)
Abstract：
UNASSIGNED: The objectives were to explore rheumatologists\' current clinical screening practices of pulmonary arterial hypertension in patients with systemic sclerosis in the United Kingdom and to identify barriers to screening and consider potential solutions.
UNASSIGNED: A survey of 31 questions was developed and included six sections: clinician demographics, the importance of screening, screening practices, barriers to screening, treatment and patient education. The survey was disseminated among rheumatologists working in the United Kingdom.
UNASSIGNED: Forty-four rheumatologists working in the United Kingdom participated in the study, and the majority completed all the questions. Around one-third (37.0%) worked in specialised systemic sclerosis units (university or general hospitals (54.5% and 45.4%, respectively)). The majority recognised that systemic sclerosis-pulmonary arterial hypertension is a major cause of morbidity and mortality. Over half (60.0%) reported using the DETECT algorithm to screen for systemic sclerosis-pulmonary arterial hypertension, although other algorithms were also sometimes used. All of the respondents utilised transthoracic echocardiogram, and almost all (95.0%) performed pulmonary function tests for screening purposes. Various challenges and barriers were identified relating to systemic sclerosis-pulmonary arterial hypertension screening, with the difficulty in interpreting results from other hospitals and extended wait times for diagnostic tests being the most reported (76.0% and 74.0%, respectively). Most respondents agreed that access to key investigations (87.0%), ongoing clinician education (82.0%), multidisciplinary meetings (79.5%) and a better understanding of proposed screening algorithms (79.5%) could be potential solutions.
UNASSIGNED: Screening patients with systemic sclerosis for pulmonary arterial hypertension is crucial to improve survival, but variable practices exist among UK rheumatologists. Solutions include educating healthcare professionals on guidelines, sharing information between centres and integrating care services.
UNASSIGNED: A survey of 31 questions was developed and included six sections: clinician demographics, the importance of screening, screening practices, barriers to screening, treatment and patient education. The survey was disseminated among rheumatologists working in the United Kingdom.
UNASSIGNED: Forty-four rheumatologists working in the United Kingdom participated in the study, and the majority completed all the questions. Around one-third (37.0%) worked in specialised systemic sclerosis units (university or general hospitals (54.5% and 45.4%, respectively)). The majority recognised that systemic sclerosis-pulmonary arterial hypertension is a major cause of morbidity and mortality. Over half (60.0%) reported using the DETECT algorithm to screen for systemic sclerosis-pulmonary arterial hypertension, although other algorithms were also sometimes used. All of the respondents utilised transthoracic echocardiogram, and almost all (95.0%) performed pulmonary function tests for screening purposes. Various challenges and barriers were identified relating to systemic sclerosis-pulmonary arterial hypertension screening, with the difficulty in interpreting results from other hospitals and extended wait times for diagnostic tests being the most reported (76.0% and 74.0%, respectively). Most respondents agreed that access to key investigations (87.0%), ongoing clinician education (82.0%), multidisciplinary meetings (79.5%) and a better understanding of proposed screening algorithms (79.5%) could be potential solutions.
UNASSIGNED: Screening patients with systemic sclerosis for pulmonary arterial hypertension is crucial to improve survival, but variable practices exist among UK rheumatologists. Solutions include educating healthcare professionals on guidelines, sharing information between centres and integrating care services.
摘要：
■目的是探索风湿病学家目前在英国系统性硬化症患者中肺动脉高压的临床筛查实践，并确定筛查障碍并考虑潜在的解决方案。
■对31个问题进行了调查，包括六个部分：临床医生人口统计，筛查的重要性，筛选实践，筛查的障碍，治疗和病人教育。该调查在英国工作的风湿病学家中传播。
■在英国工作的四十四位风湿病学家参与了这项研究，大多数人完成了所有的问题。大约三分之一（37.0％）在专门的系统性硬化症单位（大学或综合医院（54.5％和45.4％，分别）））。大多数人认识到系统性硬化症-肺动脉高压是发病和死亡的主要原因。超过一半(60.0%)报告使用DETECT算法筛查系统性硬化症-肺动脉高压,尽管有时也使用其他算法。所有受访者都使用了经胸超声心动图，几乎所有（95.0％）都进行了肺功能检查以进行筛查。确定了与系统性硬化症-肺动脉高压筛查有关的各种挑战和障碍，报告最多的是难以解释其他医院的结果，以及诊断测试的等待时间延长（76.0％和74.0％，分别)。大多数受访者同意获得关键调查(87.0%)，持续的临床医师教育（82.0%），多学科会议(79.5%)和更好地理解所提出的筛查算法(79.5%)可能是潜在的解决方案.
■筛查系统性硬化症患者的肺动脉高压对提高生存率至关重要，但是英国风湿病学家之间存在不同的实践。解决方案包括对医疗保健专业人员进行指导，在中心之间共享信息并整合护理服务。
■对31个问题进行了调查，包括六个部分：临床医生人口统计，筛查的重要性，筛选实践，筛查的障碍，治疗和病人教育。该调查在英国工作的风湿病学家中传播。
■在英国工作的四十四位风湿病学家参与了这项研究，大多数人完成了所有的问题。大约三分之一（37.0％）在专门的系统性硬化症单位（大学或综合医院（54.5％和45.4％，分别）））。大多数人认识到系统性硬化症-肺动脉高压是发病和死亡的主要原因。超过一半(60.0%)报告使用DETECT算法筛查系统性硬化症-肺动脉高压,尽管有时也使用其他算法。所有受访者都使用了经胸超声心动图，几乎所有（95.0％）都进行了肺功能检查以进行筛查。确定了与系统性硬化症-肺动脉高压筛查有关的各种挑战和障碍，报告最多的是难以解释其他医院的结果，以及诊断测试的等待时间延长（76.0％和74.0％，分别)。大多数受访者同意获得关键调查(87.0%)，持续的临床医师教育（82.0%），多学科会议(79.5%)和更好地理解所提出的筛查算法(79.5%)可能是潜在的解决方案.
■筛查系统性硬化症患者的肺动脉高压对提高生存率至关重要，但是英国风湿病学家之间存在不同的实践。解决方案包括对医疗保健专业人员进行指导，在中心之间共享信息并整合护理服务。
