PDF(Pubmed)
Abstract：
BACKGROUND: Patients who have benefited from specialist intervention during periods of acute/complex palliative care needs often transition from specialist-to-primary care once such needs have been controlled. Effective communication between services is central to co-ordination of care to avoid the potential consequences of unmet needs, fragmented care, and poor patient and family experience. Discharge communications are a key component of care transitions. However, little is known about the experiences of those primarily receiving these communications, to include patients\', carers\' and primary care healthcare professionals. This study aims to have a better understanding of how the discharge communications from specialist palliative care services to primary care are experienced by patients, carers, and healthcare professionals, and how these communications might be improved to support effective patient-centred care.
METHODS: This is a 15-month qualitative study. We will interview 30 adult patients and carers and 15 healthcare professionals (n = 45). We will seek a range of experiences of discharge communication by using a maximum variation approach to sampling, including purposively recruiting people from a range of demographic backgrounds from 4-6 specialist palliative care services (hospitals and hospices) as well as 5-7 general practices. Interview data will be analysed using a reflexive thematic approach and will involve input from the research and advisory team. Working with clinicians, commissioners, and PPI representatives we will co-produce a list of recommendations for discharge communication from specialist palliative care.
CONCLUSIONS: Data collection may be limited by the need to be sensitive to participants\' wellbeing needs. Study findings will be shared through academic publications and presentations. We will draft principles for how specialist palliative care clinicians can best communicate discharge with patients, carers, and primary care clinicians. These will be shared with clinicians, policy makers, commissioners, and PPI representatives and key stakeholders and organisations (e.g. Hospice UK) and on social media. Key outputs will be recommendations for a specialist palliative care discharge proforma.
BACKGROUND: Registered in ISRCTN Registry on 29.12.2023 ref: ISRCTN18098027.
METHODS: This is a 15-month qualitative study. We will interview 30 adult patients and carers and 15 healthcare professionals (n = 45). We will seek a range of experiences of discharge communication by using a maximum variation approach to sampling, including purposively recruiting people from a range of demographic backgrounds from 4-6 specialist palliative care services (hospitals and hospices) as well as 5-7 general practices. Interview data will be analysed using a reflexive thematic approach and will involve input from the research and advisory team. Working with clinicians, commissioners, and PPI representatives we will co-produce a list of recommendations for discharge communication from specialist palliative care.
CONCLUSIONS: Data collection may be limited by the need to be sensitive to participants\' wellbeing needs. Study findings will be shared through academic publications and presentations. We will draft principles for how specialist palliative care clinicians can best communicate discharge with patients, carers, and primary care clinicians. These will be shared with clinicians, policy makers, commissioners, and PPI representatives and key stakeholders and organisations (e.g. Hospice UK) and on social media. Key outputs will be recommendations for a specialist palliative care discharge proforma.
BACKGROUND: Registered in ISRCTN Registry on 29.12.2023 ref: ISRCTN18098027.
摘要：
背景：在急性/复杂姑息治疗期间受益于专科干预的患者，一旦这种需求得到控制，通常会从专科护理过渡到初级护理。服务之间的有效沟通是协调护理的核心，以避免未满足的需求的潜在后果，支离破碎的护理，和可怜的病人和家庭经验。出院通信是护理过渡的关键组成部分。然而,对那些主要接收这些通信的人的经历知之甚少，包括病人，护理人员和初级保健医疗保健专业人员。这项研究旨在更好地了解患者如何从专科姑息治疗服务到初级保健的出院沟通，看护者,和医疗保健专业人士，以及如何改善这些沟通以支持有效的以患者为中心的护理。
方法：这是一项为期15个月的定性研究。我们将采访30名成年患者和护理人员以及15名医疗保健专业人员（n=45）。我们将通过使用最大变化方法进行采样来寻求一系列放电通信的经验，包括从4-6个专科姑息治疗服务（医院和收容所）以及5-7个一般做法中有目的地招募来自一系列人口背景的人。面试数据将使用反身性专题方法进行分析，并将涉及研究和咨询团队的投入。与临床医生合作，专员,和PPI代表，我们将共同制定一份建议清单，供专科姑息治疗的出院沟通。
结论：数据收集可能受到对参与者的健康需求敏感的限制。研究结果将通过学术出版物和演讲分享。我们将起草有关专业姑息治疗临床医生如何最好地与患者沟通出院的原则，看护者,和初级保健临床医生。这些将与临床医生分享，政策制定者,专员,和PPI代表以及主要利益相关者和组织（例如英国临终关怀医院）和社交媒体。主要产出将是对专科姑息治疗出院形式的建议。
背景：于29.12.2023在ISRCTN注册中心注册，参考：ISRCTN18098027。
方法：这是一项为期15个月的定性研究。我们将采访30名成年患者和护理人员以及15名医疗保健专业人员（n=45）。我们将通过使用最大变化方法进行采样来寻求一系列放电通信的经验，包括从4-6个专科姑息治疗服务（医院和收容所）以及5-7个一般做法中有目的地招募来自一系列人口背景的人。面试数据将使用反身性专题方法进行分析，并将涉及研究和咨询团队的投入。与临床医生合作，专员,和PPI代表，我们将共同制定一份建议清单，供专科姑息治疗的出院沟通。
结论：数据收集可能受到对参与者的健康需求敏感的限制。研究结果将通过学术出版物和演讲分享。我们将起草有关专业姑息治疗临床医生如何最好地与患者沟通出院的原则，看护者,和初级保健临床医生。这些将与临床医生分享，政策制定者,专员,和PPI代表以及主要利益相关者和组织（例如英国临终关怀医院）和社交媒体。主要产出将是对专科姑息治疗出院形式的建议。
背景：于29.12.2023在ISRCTN注册中心注册，参考：ISRCTN18098027。
