Abstract：
BACKGROUND: Informal caregivers aid hospice patients at the end of life. Little is known of their preparation and confidence in providing care, and how this relates to experiences of hospice care.
OBJECTIVE: Examine factors associated with informal caregivers\' rating of home hospice care.
METHODS: Data come from 828 completed CAHPS® surveys mailed between January 2022 and December 2023 from a single non-profit Hospice organization. Multivariate logistic regression analyses examined the independent influence of various aspects of hospice care on ratings of hospice.
RESULTS: Nine of every 10 respondents rated hospice care high (9 or 10). Most aspects of hospice care were rated favorably. Nearly all respondents felt the patient was treated with dignity and respect (96%). The measure with the greatest room for improvement was getting help as soon as needed (82% \"always\"). Multivariate analyses revealed 6 factors that independently predicted overall rating of hospice care. The strongest predictor was always getting help as soon as needed, followed by believing the hospice team cared about the patient. Three measures of caregiver training were significantly associated with higher ratings of hospice care being trained to: safely move the patient, what to do if patient became restless, and on pain medications.
CONCLUSIONS: When informal caregivers feel trained to assess and manage the symptoms, they rate hospice care more favorably. Greater attention to informal caregiver training and support are imperative to improving hospice care.
OBJECTIVE: Examine factors associated with informal caregivers\' rating of home hospice care.
METHODS: Data come from 828 completed CAHPS® surveys mailed between January 2022 and December 2023 from a single non-profit Hospice organization. Multivariate logistic regression analyses examined the independent influence of various aspects of hospice care on ratings of hospice.
RESULTS: Nine of every 10 respondents rated hospice care high (9 or 10). Most aspects of hospice care were rated favorably. Nearly all respondents felt the patient was treated with dignity and respect (96%). The measure with the greatest room for improvement was getting help as soon as needed (82% \"always\"). Multivariate analyses revealed 6 factors that independently predicted overall rating of hospice care. The strongest predictor was always getting help as soon as needed, followed by believing the hospice team cared about the patient. Three measures of caregiver training were significantly associated with higher ratings of hospice care being trained to: safely move the patient, what to do if patient became restless, and on pain medications.
CONCLUSIONS: When informal caregivers feel trained to assess and manage the symptoms, they rate hospice care more favorably. Greater attention to informal caregiver training and support are imperative to improving hospice care.
摘要：
背景：非正式照顾者在临终关怀患者的生命结束时帮助他们。人们对他们在提供护理方面的准备和信心知之甚少，以及这与临终关怀的经历有什么关系。
目的：检查与非正式护理人员家庭临终关怀评级相关的因素。
方法：数据来自2022年1月至2023年12月从一个非营利性临终关怀组织寄出的828项完成的CAHPS®调查。多变量逻辑回归分析了临终关怀护理各个方面对临终关怀评级的独立影响。
结果：每10名受访者中就有9人将临终关怀护理评价高（9或10）。临终关怀的大多数方面都得到了好评。几乎所有受访者都认为患者得到了尊严和尊重（96％）。改进空间最大的措施是在需要时尽快获得帮助（82％“总是”）。多变量分析揭示了6个独立预测临终关怀总体评级的因素。最强的预测指标总是在需要时尽快得到帮助，然后相信临终关怀团队关心病人.护理人员培训的三项措施与接受培训的临终关怀护理的较高评级显着相关：安全地移动患者，如果病人变得焦躁不安该怎么办，和止痛药。
结论：当非正式护理人员感到接受过评估和管理症状的培训时，他们对临终关怀的评价更高。对于改善临终关怀护理，必须更加重视非正式的护理人员培训和支持。
目的：检查与非正式护理人员家庭临终关怀评级相关的因素。
方法：数据来自2022年1月至2023年12月从一个非营利性临终关怀组织寄出的828项完成的CAHPS®调查。多变量逻辑回归分析了临终关怀护理各个方面对临终关怀评级的独立影响。
结果：每10名受访者中就有9人将临终关怀护理评价高（9或10）。临终关怀的大多数方面都得到了好评。几乎所有受访者都认为患者得到了尊严和尊重（96％）。改进空间最大的措施是在需要时尽快获得帮助（82％“总是”）。多变量分析揭示了6个独立预测临终关怀总体评级的因素。最强的预测指标总是在需要时尽快得到帮助，然后相信临终关怀团队关心病人.护理人员培训的三项措施与接受培训的临终关怀护理的较高评级显着相关：安全地移动患者，如果病人变得焦躁不安该怎么办，和止痛药。
结论：当非正式护理人员感到接受过评估和管理症状的培训时，他们对临终关怀的评价更高。对于改善临终关怀护理，必须更加重视非正式的护理人员培训和支持。
