关键词: Alzheimer’s disease and related dementias family caregivers informal caregivers

来  源:   DOI:10.1177/07334648241262649

Abstract:
Care partners are crucial to supporting the complex health needs of older adults with dementia, but they are not systematically identified in care delivery. As part of a real-world implementation project in geriatric primary care, we adapted a portal-based agenda setting intervention, OurNotes, by incorporating items to help care partners self-identify. Semi-structured interviews were conducted with care partners (N = 15) who completed the adapted OurNotes to explore their perceptions of the tool (usability, benefits, and challenges) and recommendations for refinement. The data were analyzed using thematic analysis. Benefits included enhancing care partners\' preparedness for the visit and opening a direct channel to express concerns about patients\' cognition and memory loss to clinicians. Challenges pertained to clinician responsiveness; recommendations focused on enabling the submitted OurNotes responses to be edited and updated by multiple care partners. Such refinements may help to maximize the impact of adapted OurNotes\' and potential for future implementation and dissemination.
摘要:
护理伙伴对于支持患有痴呆症的老年人的复杂健康需求至关重要。但它们在护理交付中没有被系统地识别。作为老年初级保健现实世界实施项目的一部分,我们调整了基于门户的议程设置干预,OurNotes,通过纳入项目来帮助护理伙伴自我识别。半结构化访谈与护理合作伙伴(N=15)进行,他们完成了改编的OurNotes,以探索他们对该工具的看法(可用性,好处,和挑战)和改进建议。采用专题分析法对数据进行分析。益处包括加强护理合作伙伴的访问准备,并打开一个直接的渠道,向临床医生表达对患者认知和记忆丧失的担忧。挑战与临床医生的反应能力有关;建议的重点是使提交的OurNotes响应能够由多个护理合作伙伴进行编辑和更新。这样的改进可能有助于最大限度地扩大修改后的OurNotes的影响以及未来实施和传播的潜力。
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