PDF(Pubmed)
Abstract：
BACKGROUND: Many people experience persistent symptoms for more than 12 weeks following SARS-CoV-2 infection, which is known as post-COVID-19 condition (PCS) or Long COVID (LC). PCS can impair people\'s quality of life and daily functioning. However, there is a lack of in-depth research exploring the PCS patient journey, as well as gendered aspects of patients\' experiences.
METHODS: Nineteen semi-structured qualitative interviews were conducted with people living with PCS in the United Kingdom (13 women, 6 men). Interviews were transcribed verbatim and analysed inductively using reflexive thematic analysis.
RESULTS: Five main themes were identified: \'Symptom dismissal\', \'Lack of information and support\', \'Life before and after Long COVID\', \'Psychological impact\' and \'Acceptance\'. A shift overtime to self-management of symptoms was evident. These themes represent different stages of patients\' PCS journey. Narratives indicated that women highlighted dismissal by healthcare professionals (HCPs), which was not as prominent in men\'s narratives. In addition, women went into more detail about the psychological impact of PCS compared to men.
CONCLUSIONS: Women with PCS reported symptom dismissal by HCPs, which may have delayed their diagnosis and negatively affected their well-being. We were not able to explore the experiences of people from non-conforming gender groups. Raising awareness of these issues among HCPs, particularly general practitioners, could improve patient care in PCS.
UNASSIGNED: Patient and public involvement consisted of people who took part in the interviews and commented on the themes\' interpretation and study conclusions.
METHODS: Nineteen semi-structured qualitative interviews were conducted with people living with PCS in the United Kingdom (13 women, 6 men). Interviews were transcribed verbatim and analysed inductively using reflexive thematic analysis.
RESULTS: Five main themes were identified: \'Symptom dismissal\', \'Lack of information and support\', \'Life before and after Long COVID\', \'Psychological impact\' and \'Acceptance\'. A shift overtime to self-management of symptoms was evident. These themes represent different stages of patients\' PCS journey. Narratives indicated that women highlighted dismissal by healthcare professionals (HCPs), which was not as prominent in men\'s narratives. In addition, women went into more detail about the psychological impact of PCS compared to men.
CONCLUSIONS: Women with PCS reported symptom dismissal by HCPs, which may have delayed their diagnosis and negatively affected their well-being. We were not able to explore the experiences of people from non-conforming gender groups. Raising awareness of these issues among HCPs, particularly general practitioners, could improve patient care in PCS.
UNASSIGNED: Patient and public involvement consisted of people who took part in the interviews and commented on the themes\' interpretation and study conclusions.
摘要：
背景：许多人在SARS-CoV-2感染后出现持续症状超过12周，这被称为后COVID-19病症(PCS)或长COVID(LC)。PCS会损害人们的生活质量和日常功能。然而,缺乏探索PCS患者旅程的深入研究，以及患者经历的性别方面。
方法：对英国PCS患者进行了19次半结构化定性访谈（13名女性，6人）。访谈被逐字转录，并使用反身主题分析进行归纳分析。
结果：确定了五个主要主题：\'症状解雇\'，\'缺乏信息和支持\'，\'长COVID之前和之后的生活\'，\'心理影响\'和\'接受\'。明显转变为症状的自我管理。这些主题代表了患者PCS旅程的不同阶段。叙述表明，妇女强调被医疗保健专业人员(HCPs)解雇，这在男人的叙述中并不突出。此外,与男性相比，女性更详细地介绍了PCS的心理影响。
结论：患有PCS的妇女报告了HCP的症状，这可能会延迟他们的诊断并对他们的健康产生负面影响。我们无法探索来自不合格性别群体的人们的经历。提高HCPs对这些问题的认识，特别是全科医生，可以改善PCS患者的护理。
患者和公众的参与包括参加访谈的人，并对主题的解释和研究结论发表评论。
方法：对英国PCS患者进行了19次半结构化定性访谈（13名女性，6人）。访谈被逐字转录，并使用反身主题分析进行归纳分析。
结果：确定了五个主要主题：\'症状解雇\'，\'缺乏信息和支持\'，\'长COVID之前和之后的生活\'，\'心理影响\'和\'接受\'。明显转变为症状的自我管理。这些主题代表了患者PCS旅程的不同阶段。叙述表明，妇女强调被医疗保健专业人员(HCPs)解雇，这在男人的叙述中并不突出。此外,与男性相比，女性更详细地介绍了PCS的心理影响。
结论：患有PCS的妇女报告了HCP的症状，这可能会延迟他们的诊断并对他们的健康产生负面影响。我们无法探索来自不合格性别群体的人们的经历。提高HCPs对这些问题的认识，特别是全科医生，可以改善PCS患者的护理。
患者和公众的参与包括参加访谈的人，并对主题的解释和研究结论发表评论。
