PDF(Pubmed)
Abstract：
BACKGROUND: The aging population is a challenge for the healthcare system that must identify strategies that meet their needs. Practicing patient-centered care has been shown beneficial for this patient-group. The effect of patient-centered care is called patient-centered outcomes and can be appraised using outcomes measurements.
OBJECTIVE: The main aim was to review and map existing knowledge related to patient-centered outcomes and patient-centered outcomes measurements for older people, as well as identify key-concepts and knowledge-gaps. The research questions were: How can patient-centered outcomes for older people be measured, and which patient-centered outcomes matters the most for the older people?
METHODS: Scoping review.
METHODS: Search for relevant publications in electronical databases, grey literature databases and websites from year 2000 to 2021. Two reviewers independently screened titles and abstracts, followed by full text review and extraction of data using a data extraction framework.
RESULTS: Eighteen studies were included, of which six with involvement of patients and/or experts in the process on determine the outcomes. Outcomes that matter the most to older people was interpreted as: access to- and experience of care, autonomy and control, cognition, daily living, emotional health, falls, general health, medications, overall survival, pain, participation in decision making, physical function, physical health, place of death, social role function, symptom burden, and time spent in hospital. The most frequently mentioned/used outcomes measurements tools were the Adult Social Care Outcomes Toolkit (ASCOT), EQ-5D, Gait Speed, Katz- ADL index, Patient Health Questionnaire (PHQ9), SF/RAND-36 and 4-Item Screening Zarit Burden Interview.
CONCLUSIONS: Few studies have investigated the older people\'s opinion of what matters the most to them, which forms a knowledge-gap in the field. Future research should focus on providing older people a stronger voice in what they think matters the most to them.
OBJECTIVE: The main aim was to review and map existing knowledge related to patient-centered outcomes and patient-centered outcomes measurements for older people, as well as identify key-concepts and knowledge-gaps. The research questions were: How can patient-centered outcomes for older people be measured, and which patient-centered outcomes matters the most for the older people?
METHODS: Scoping review.
METHODS: Search for relevant publications in electronical databases, grey literature databases and websites from year 2000 to 2021. Two reviewers independently screened titles and abstracts, followed by full text review and extraction of data using a data extraction framework.
RESULTS: Eighteen studies were included, of which six with involvement of patients and/or experts in the process on determine the outcomes. Outcomes that matter the most to older people was interpreted as: access to- and experience of care, autonomy and control, cognition, daily living, emotional health, falls, general health, medications, overall survival, pain, participation in decision making, physical function, physical health, place of death, social role function, symptom burden, and time spent in hospital. The most frequently mentioned/used outcomes measurements tools were the Adult Social Care Outcomes Toolkit (ASCOT), EQ-5D, Gait Speed, Katz- ADL index, Patient Health Questionnaire (PHQ9), SF/RAND-36 and 4-Item Screening Zarit Burden Interview.
CONCLUSIONS: Few studies have investigated the older people\'s opinion of what matters the most to them, which forms a knowledge-gap in the field. Future research should focus on providing older people a stronger voice in what they think matters the most to them.
摘要：
背景：人口老龄化是医疗保健系统的挑战，必须确定满足其需求的策略。实践以患者为中心的护理已被证明对该患者群体有益。以患者为中心的护理的效果称为以患者为中心的结果，可以使用结果测量来评估。
目的：主要目的是回顾和绘制与老年人以患者为中心的结果和以患者为中心的结果测量相关的现有知识，以及确定关键概念和知识差距。研究问题是：如何衡量老年人以患者为中心的结果，哪些以患者为中心的结果对老年人最重要？
方法：范围综述。
方法：搜索电子数据库中的相关出版物，2000年至2021年的灰色文献数据库和网站。两名审稿人独立筛选标题和摘要，接下来是全文回顾和使用数据提取框架提取数据。
结果：纳入了18项研究，其中6名患者和/或专家参与了确定结果的过程。对老年人来说最重要的结果被解释为：获得护理和体验，自治和控制，认知，日常生活,情绪健康,falls,一般健康,药物,总生存率,疼痛,参与决策，物理功能，身体健康,死亡的地方,社会角色功能，症状负担，和在医院度过的时间。最常提及/使用的结果测量工具是成人社会护理结果工具包(ASCOT)，EQ-5D,步态速度,Katz-ADL指数，患者健康问卷（PHQ9），SF/RAND-36和4项筛选Zarit负担访谈。
结论：很少有研究调查老年人对他们最重要的事情的看法，这形成了该领域的知识鸿沟。未来的研究应该集中在为老年人提供他们认为对他们最重要的声音。
目的：主要目的是回顾和绘制与老年人以患者为中心的结果和以患者为中心的结果测量相关的现有知识，以及确定关键概念和知识差距。研究问题是：如何衡量老年人以患者为中心的结果，哪些以患者为中心的结果对老年人最重要？
方法：范围综述。
方法：搜索电子数据库中的相关出版物，2000年至2021年的灰色文献数据库和网站。两名审稿人独立筛选标题和摘要，接下来是全文回顾和使用数据提取框架提取数据。
结果：纳入了18项研究，其中6名患者和/或专家参与了确定结果的过程。对老年人来说最重要的结果被解释为：获得护理和体验，自治和控制，认知，日常生活,情绪健康,falls,一般健康,药物,总生存率,疼痛,参与决策，物理功能，身体健康,死亡的地方,社会角色功能，症状负担，和在医院度过的时间。最常提及/使用的结果测量工具是成人社会护理结果工具包(ASCOT)，EQ-5D,步态速度,Katz-ADL指数，患者健康问卷（PHQ9），SF/RAND-36和4项筛选Zarit负担访谈。
结论：很少有研究调查老年人对他们最重要的事情的看法，这形成了该领域的知识鸿沟。未来的研究应该集中在为老年人提供他们认为对他们最重要的声音。
