Abstract:
Objectives: This study aimed to understand the care needs, care arrangements and burden of care for people with dementia in Northern Tanzania. Methods: This was a cross-sectional, observational study. People with dementia and their carers (n = 53) were recruited from an outpatient clinic, and data on carer burden and independence in activities of daily living were collected. Associations with carer burden and characteristics were explored through non-parametric tests and regression analyses. Results: Thirty-six carers were female (68%). Levels of impairment in instrumental activities of daily living were high, with a median score of 38 out of 44 on the Identification and Intervention for Dementia in Elderly Africans - Instrumental Activities of Daily Living (IDEA-IADL). Carer burden was moderate with a median Zarit Burden Interview (ZBI) score of 46 out of 88. Being a female carer was associated with higher carer burden (odds ratio 3.68, 95% CI 1.04-12.99). Discussion: Carer burden was found to be higher than in previous studies based in low-and-middle income countries. Further research is needed to explore this difference, and to identify interventions to support care needs and reduce carer burden.
摘要:
目的:本研究旨在了解护理需求,坦桑尼亚北部痴呆症患者的护理安排和护理负担。方法:这是一个横断面,观察性研究。痴呆症患者及其照顾者(n=53)从门诊诊所招募,并收集了有关照顾者负担和日常生活活动独立性的数据。通过非参数检验和回归分析探讨了与照顾者负担和特征的关联。结果:36名护理人员为女性(68%)。日常生活的工具性活动受损水平很高,在非洲老年人痴呆症的识别和干预-日常生活工具活动(IDEA-IADL)中,44分的中位数为38分。护理人员负担中等,Zarit负担访谈(ZBI)的中位数为88分中的46分。作为女性护理人员与更高的护理人员负担相关(比值比3.68,95%CI1.04-12.99)。讨论:发现护理人员负担高于以前在中低收入国家进行的研究。需要进一步的研究来探索这种差异,并确定支持护理需求和减轻护理人员负担的干预措施。