关键词: caregivers culturally competent care culture death hospice and palliative care nursing nursing assistants palliative care qualitative research terminal care

来  源:   DOI:10.1111/jocn.17314

Abstract:
OBJECTIVE: What are care workers\' lived experiences caring for people of culturally and linguistically diverse backgrounds during end-of-life care?
METHODS: Interpretative phenomenological analysis METHODS: The lived experiences of 11 care workers within the Australian Capital Territory and region who have cared for someone of a culturally and linguistically diverse background during end-of-life care were captured. Each care worker was interviewed individually and answered a series of semi-structured open-ended questions.
RESULTS: Using interpretative phenomenological analysis, three group experiential themes were derived: (i) navigating cultural shock and death, (ii) the hard work of communication and (iii) searching for deeper connections with client and self. Within these were key elements: Care workers worked hard to embrace cultural diversity, but struggled to meet cultural needs, particularly in relation to the unpredictable timeline of dying. Care workers relied on themselves and their improvisation, but experienced self-blame for inadequate care and unexpected challenges in communication. Blurred boundaries in relation to therapeutic relationships were apparent, and care workers felt alone with emotional burden, but also found belonging and joy in their work.
CONCLUSIONS: Care workers\' experiences are vital to understanding the barriers and challenges in providing culturally appropriate end-of-life care. Care workers repeatedly experienced an emotional burden and vicarious trauma throughout their work in this field. Care workers were self-reliant in all aspects of care including communication and consistently desired education, training, resources and support. There remains inadequate research on care workers and their role within the Australian healthcare context.
UNASSIGNED: Care workers need access to support and resources including professional translators to provide culturally appropriate end-of-life care. Workplaces and registered nurses should facilitate training and provide guidance to care workers. A person-centred approach is required during all client encounters while maintaining appropriate therapeutic relationships including therapeutic use of self and professional boundaries.
UNASSIGNED: COREQ Checklist.
UNASSIGNED: During this study, care workers were interviewed on their experiences caring for people of culturally and linguistically diverse backgrounds during end-of-life care. Patients were not directly involved within this study, but their views may have been expressed through the care workers\' experience.
摘要:
目的:在临终关怀期间,护理人员的生活经历是在文化和语言上不同背景的人中的生活经历吗?
方法:解释性现象学分析方法:捕获了澳大利亚首都地区和地区的11名护理人员的生活经历,这些护理人员在临终关怀期间曾照顾过文化和语言上不同背景的人。每位护理人员都接受了单独采访,并回答了一系列半结构化的开放式问题。
结果:使用解释现象学分析,得出三组体验主题:(I)导航文化冲击和死亡,(ii)沟通的辛勤工作和(iii)寻找与客户和自我的更深层次的联系。其中包括关键要素:护理人员努力拥抱文化多样性,但努力满足文化需求,特别是关于死亡的不可预测的时间表。护理人员依靠自己和他们的即兴创作,但经历了自责的照顾不足和意外的挑战在沟通。与治疗关系的模糊界限是显而易见的,护理人员感到孤独和情感负担,但也在他们的工作中找到归属感和快乐。
结论:护理人员的经验对于理解在提供符合文化的临终关怀方面的障碍和挑战至关重要。护理人员在这一领域的工作中反复经历了情感负担和替代创伤。护理人员在护理的各个方面都自力更生,包括沟通和始终如一的教育,培训,资源和支持。关于护理人员及其在澳大利亚医疗保健背景下的作用的研究仍然不足。
护理人员需要获得支持和资源,包括专业翻译人员,以提供文化上适当的临终护理。工作场所和注册护士应促进培训并向护理人员提供指导。在所有客户遇到时都需要以人为中心的方法,同时保持适当的治疗关系,包括自我和专业界限的治疗使用。
COREQ清单。
在这项研究中,护理人员接受了采访,了解他们在临终关怀期间照顾文化和语言不同背景的人的经历。患者没有直接参与这项研究,但他们的观点可能是通过护理人员的经验表达的。
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