关键词: end of life life-limiting condition nursing care paediatric palliative care

Mesh : Humans Child Hospice and Palliative Care Nursing Palliative Care Attitude of Health Personnel

来  源:   DOI:10.12968/ijpn.2024.30.5.212

Abstract:
UNASSIGNED: Paediatric palliative care (PPC) has evolved in response to the increased prevalence of children who have been diagnosed with life-limiting conditions. Nursing care is a fundamental aspect of PPC and understanding nurses\' experiences is imperative to the provision and development of quality holistic child-centred services.
UNASSIGNED: To review nurses\' experiences of providing palliative care for children with life-limiting conditions.
UNASSIGNED: A systematic database search of the Cumulative Index to Nursing and Allied Health Literature (CINAHL) Complete, Ovid Medline and Scopus was undertaken. Key words consisted of \'palliative care\' or \'terminal care\' or \'dying\' or \'end-of-life care\' and children* or paediatric* or pediatric* and \'nurs* experience*\' or \'nurs* view*\' or \'nurs* perspective*\' or \'nurs* feeling*\'. Inclusion criteria included peer-reviewed studies published between 2016-2023 in the English language.
UNASSIGNED: A thematic approach was adopted with the 11 papers selected for the review and each study critically analysed to identify three recurring themes. The themes included: \'a broken wreck\', \'makes a life worth living\' and \'challenges in doing 100%\'. Findings point to mixed feelings among nurses in providing PPC and suggest that nurses experience emotional distress when caring for dying children. With appropriate supports and inspiration from their paediatric patients, nurses are determined to provide a \'good death\' for the children in their care. Nevertheless, the perceived lack of knowledge and experience, communication struggles and personal dilemmas can be predisposing factors in triggering negative experiences among nurses when providing palliative care for children with life-limiting conditions.
UNASSIGNED: Education and policy development is required to meet the practice needs and support the emotional needs of nurses engaged in PPC. Further research is required to generate PPC evidence-based nursing interventions. In doing so, high quality PPC practice will be promoted, thereby ensuring high quality PPC for the children and their families.
摘要:
儿科姑息治疗(PPC)随着被诊断患有生命限制性疾病的儿童患病率的增加而发展。护理是PPC的基本方面,了解护士的经验对于提供和发展以儿童为中心的优质整体服务至关重要。
回顾护士为生活受限儿童提供姑息治疗的经验。
完整的护理和相关健康文献(CINAHL)累积指数的系统数据库搜索,进行了OvidMedline和Scopus。关键词包括\'姑息治疗\'或\'临终治疗\'或\'临终\'或\'临终护理\'和儿童*或儿科*或儿科*和\'nurs*经验*\'或\'nurs*查看*\'或\'nurs*透视*\'或\'nurs*感觉*'。纳入标准包括2016-2023年间以英语发表的同行评审研究。
采用了主题方法,选择了11篇论文进行审查,并对每项研究进行了批判性分析,以确定三个重复出现的主题。主题包括:\“破碎的残骸\”,\'使生活值得生活\'和\'挑战做100%\'。研究结果表明,护士在提供PPC时喜忧参半,并建议护士在照顾垂死的孩子时会经历情绪困扰。在儿科患者的适当支持和启发下,护士决心为他们照顾的孩子提供一个“好的死亡”。然而,感知到的知识和经验的缺乏,在为生活受限的儿童提供姑息治疗时,沟通斗争和个人困境可能是引发护士负面经历的诱发因素。
需要教育和政策制定,以满足从事PPC的护士的实践需求并支持其情感需求。需要进一步的研究来生成PPC循证护理干预措施。在这样做的时候,高质量的PPC实践将得到推广,从而确保为儿童及其家庭提供高质量的PPC。
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