关键词: disabled children formal support informal support parenting stress person-oriented analysis

来  源:   DOI:10.3389/fpsyg.2024.1389995   PDF(Pubmed)

Abstract:
UNASSIGNED: To investigate patterns of parenting stress and access to sufficient informal and formal support among parents of children with disabilities. To explore whether child cognitive level, conduct problems and the need of language interpretation in contacts between parents and professionals are associated with patterns of parenting stress and support.
UNASSIGNED: Parents (N = 140) of children with disabilities in Sweden completed a questionnaire about parenting stress and support. Patterns of three variables-parenting stress and access to sufficient informal and formal support-were investigated using cluster analysis. The relationship of child cognitive level, level of conduct problems and of language interpretation needs between parents and professionals to cluster membership was explored using multinomial logistic regression.
UNASSIGNED: Five different clusters of parenting stress and support emerged. Parents in cluster 1 had lower than sample mean ratings on all three variables. Cluster 2 had elevated parenting stress, cluster 3 had elevated insufficient informal support and cluster 4 had elevated insufficient formal support. Cluster 5 had elevated ratings on all three variables. Greater child cognitive difficulties increased the likelihood of parent membership in cluster 2 (elevated stress), cluster 3 (elevated insufficient informal support), or cluster 5 (elevated ratings on all variables). Child conduct problems increased the likelihood of membership in cluster 2 (elevated stress) or cluster 5 (elevated ratings on all variables). No relationship between language interpretation needs and cluster membership was found.
UNASSIGNED: Patterns of parenting stress and sufficiency of support, and their associations with child characteristics, vary substantially. However, families of children with conduct problems experiencing elevated parenting stress in combination with insufficient informal and formal support, may be particularly vulnerable. The results of the current study highlight the clinical importance of exploring and identifying individual parenting stressors and perceived levels of support, to be able to adapt services to better suit a variety of needs, and thus promote equitable care.
摘要:
调查残疾儿童父母的育儿压力和获得足够非正式和正式支持的模式。探讨儿童认知水平,父母和专业人士之间的行为问题和语言解释的需要与父母的压力和支持模式有关。
瑞典残疾儿童的父母(N=140)填写了一份关于育儿压力和支持的问卷。使用聚类分析研究了三个变量的模式-育儿压力和获得足够的非正式和正式支持。儿童认知水平的关系,使用多项逻辑回归探讨了父母和专业人士之间的行为问题和语言解释需求水平,以聚类成员。
出现了五种不同的育儿压力和支持簇。集群1中的父母在所有三个变量上的评分均低于样本均值。第2组育儿压力升高,第3组增加了非正式支持不足,第4组增加了正式支持不足。第5组对所有三个变量的评级都提高了。更大的儿童认知困难增加了集群2中父母成员的可能性(压力升高),第3组(非正式支持不足),或集群5(所有变量的评级提高)。儿童行为问题增加了第2组(压力升高)或第5组(所有变量的评级升高)中成员资格的可能性。没有发现语言解释需求和群集成员之间的关系。
育儿压力和充足支持的模式,以及它们与儿童特征的联系,差异很大。然而,有行为问题的儿童的家庭经历了升高的育儿压力,加上非正式和正式的支持不足,可能特别脆弱。当前研究的结果突出了探索和识别个体育儿压力源和感知支持水平的临床重要性,能够适应服务以更好地适应各种需求,从而促进公平的照顾。
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