Abstract：
OBJECTIVE: To identify and promote hospital pharmacy initiatives to improve the management of patients with hereditary angioedema (HAE) within the Spanish healthcare system.
METHODS: A panel of experts comprising hospital pharmacists, an allergist and a nurse/member of the Spanish Hereditary Angioedema Association (Asociación Española de Angioedema Familiar) highlighted initiatives to improve care for patients with HAE after identifying, evaluating and prioritising them. Prioritisation was assessed based on the impact on patient care and the feasibility of their implementation on a scale of 1-5.
RESULTS: Seven key areas of activity for the role of hospital pharmacists in the management of patients with HAE were identified: evaluation and selection of medicines; hospital pharmacy dispensation and telepharmacy; pharmacotherapy follow-up and telemedicine; coordination with other healthcare teams involved in the care of patients with HAE; patient health education and training; research on HAE; and continuous education and training of hospital pharmacy service personnel. Ten initiatives with a mean impact score of 5 and a mean feasibility score of ≥4.1 were considered as high-priority initiatives. Half of the initiatives belong to the area concerning patient education and training (50%), followed by care coordination initiatives (30%) and continuous education and training (20%).
CONCLUSIONS: Ten high-priority initiatives for the management of patients with HAE were identified by a panel of experts. The implementation of such initiatives by the hospital pharmacy service should enhance the management of patients with HAE in the Spanish healthcare system.
METHODS: A panel of experts comprising hospital pharmacists, an allergist and a nurse/member of the Spanish Hereditary Angioedema Association (Asociación Española de Angioedema Familiar) highlighted initiatives to improve care for patients with HAE after identifying, evaluating and prioritising them. Prioritisation was assessed based on the impact on patient care and the feasibility of their implementation on a scale of 1-5.
RESULTS: Seven key areas of activity for the role of hospital pharmacists in the management of patients with HAE were identified: evaluation and selection of medicines; hospital pharmacy dispensation and telepharmacy; pharmacotherapy follow-up and telemedicine; coordination with other healthcare teams involved in the care of patients with HAE; patient health education and training; research on HAE; and continuous education and training of hospital pharmacy service personnel. Ten initiatives with a mean impact score of 5 and a mean feasibility score of ≥4.1 were considered as high-priority initiatives. Half of the initiatives belong to the area concerning patient education and training (50%), followed by care coordination initiatives (30%) and continuous education and training (20%).
CONCLUSIONS: Ten high-priority initiatives for the management of patients with HAE were identified by a panel of experts. The implementation of such initiatives by the hospital pharmacy service should enhance the management of patients with HAE in the Spanish healthcare system.
摘要：
目的：确定和促进医院药学计划，以改善西班牙医疗保健系统中遗传性血管性水肿（HAE）患者的管理。
方法：由医院药剂师组成的专家小组，西班牙遗传性血管性水肿协会(AsociaciónEspañoladeAngioedemademiaFamiliar)的一名过敏症专科医生和一名护士/成员强调了在确定后改善HAE患者护理的举措，评估并优先考虑它们。根据对患者护理的影响以及以1-5的等级实施的可行性来评估优先级。
结果：确定了医院药剂师在HAE患者管理中的作用的七个关键活动领域：药物的评估和选择；医院药房分配和远程药房；药物治疗随访和远程医疗；与参与HAE患者护理的其他医疗团队的协调；患者健康教育和培训；HAE研究；以及对医院药学服务人员的持续教育和培训。平均影响得分为5分和平均可行性得分为≥4.1分的10项举措被认为是高优先级举措。一半的举措属于与患者教育和培训有关的领域（50％），其次是护理协调计划(30%)和持续教育和培训(20%)。
结论：专家小组确定了HAE患者管理的十项高优先级举措。医院药房服务部门实施此类举措应加强对西班牙医疗保健系统中HAE患者的管理。
方法：由医院药剂师组成的专家小组，西班牙遗传性血管性水肿协会(AsociaciónEspañoladeAngioedemademiaFamiliar)的一名过敏症专科医生和一名护士/成员强调了在确定后改善HAE患者护理的举措，评估并优先考虑它们。根据对患者护理的影响以及以1-5的等级实施的可行性来评估优先级。
结果：确定了医院药剂师在HAE患者管理中的作用的七个关键活动领域：药物的评估和选择；医院药房分配和远程药房；药物治疗随访和远程医疗；与参与HAE患者护理的其他医疗团队的协调；患者健康教育和培训；HAE研究；以及对医院药学服务人员的持续教育和培训。平均影响得分为5分和平均可行性得分为≥4.1分的10项举措被认为是高优先级举措。一半的举措属于与患者教育和培训有关的领域（50％），其次是护理协调计划(30%)和持续教育和培训(20%)。
结论：专家小组确定了HAE患者管理的十项高优先级举措。医院药房服务部门实施此类举措应加强对西班牙医疗保健系统中HAE患者的管理。
