关键词: Family burden Health and social care integration Palliative care Psychological impact Quality of life

Mesh : Humans Palliative Care / methods psychology standards Male Female Prospective Studies Aged Middle Aged Surveys and Questionnaires Family / psychology Aged, 80 and over Terminally Ill / psychology Quality of Life / psychology Adult

来  源:   DOI:10.1186/s12904-024-01475-7   PDF(Pubmed)

Abstract:
BACKGROUND: Palliative care and the integration of health and social care have gradually become the key direction of development to address the aging of the population and the growing burden of multimorbidity at the end of life in the elderly.
OBJECTIVE: To explore the benefits/effectiveness of the availability and stability of palliative care for family members of terminally ill patients in an integrated institution for health and social care.
METHODS: This prospective observational study was conducted at an integrated institution for health and social care. 230 patients with terminal illness who received palliative care and their family members were included. Questionnaires and scales were administered to the family members of patients during the palliative care process, including quality-of-life (SF-8), family burden (FBSD, CBI), anxiety (HAMA), and distress (DT). We used paired t-tests and correlation analyses to analyze the data pertaining to our research questions.
RESULTS: In the integrated institution for health and social care, palliative care can effectively improve quality of life, reduce the family\'s burden and relieve psychological impact for family members of terminally ill patients. Palliative care was an independent influencing factor on the quality of life, family burden, and psychosocial status. Independently of patient-related and family-related factors, the results are stable and widely applicable.
CONCLUSIONS: The findings underline the availability and stability of palliative care and the popularization of an integrated service model of health and social care for elder adults.
摘要:
背景:姑息治疗和健康与社会护理的整合已逐渐成为解决人口老龄化和老年人生命末期多重性负担的发展重点方向。
目的:探讨在健康和社会护理综合机构中,对绝症患者的家庭成员提供姑息治疗和稳定治疗的益处/有效性。
方法:这项前瞻性观察性研究是在健康和社会护理综合机构进行的。纳入230名接受姑息治疗的绝症患者及其家庭成员。在姑息治疗过程中,对患者家属进行问卷调查和量表,包括生活质量(SF-8),家庭负担(FBSD,CBI),焦虑(HAMA),和遇险(DT)。我们使用配对t检验和相关性分析来分析与我们的研究问题有关的数据。
结果:在卫生和社会护理综合机构中,姑息治疗能有效提高生活质量,减轻家庭负担,减轻绝症患者家属的心理影响。姑息治疗是影响患者生活质量的独立因素,家庭负担,和心理社会地位。独立于患者相关和家庭相关因素,结果稳定、适用性广。
结论:这些发现强调了姑息治疗的可用性和稳定性,以及老年人健康和社会护理综合服务模式的普及。
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