关键词: administrative burden administrative hurdles economic burden economic wellbeing financial burden financial toxicity

来  源:   DOI:10.2144/fsoa-2023-0229   PDF(Pubmed)

Abstract:
Aim: This qualitative study refined a conceptual model of financial hardship and developed measures corresponding to model constructs. Methods: Eighteen women with breast cancer recruited through a comprehensive cancer center completed interviews. A qualitative framework analysis was conducted of the interviews. Results: Participants experienced varying levels of financial hardship. Protective factors included good health insurance, work accommodations and social support. Participants worried about cancer care costs and employment. Programs for alleviating financial hardship had high administrative burdens. Four preliminary financial hardship measures were developed: coping, impacts, depression and worry. Conclusion: Reducing administrative barriers to benefits could reduce financial hardship after cancer. More research is needed on the effects of out-of-network/formulary care and denials of coverage and to validate the measures.
Financial hardship is common after cancer diagnosis. This study interviewed women with breast cancer about financial hardship. Financial hardship included how participants coped with healthcare costs and reduced income. Worry and depression were also aspects of financial hardship. Administrative burdens led to financial hardship. Administrative burdens were actions patients had to take to access financial support. This study also created surveys to measure financial hardship in cancer.
This study revised a conceptual model of financial burden after cancer. Measures were developed for each financial burden dimension from the model. Reducing administrative hurdles for work accommodations and insurance could prevent burden.
摘要:
目的:这项定性研究完善了财务困难的概念模型,并制定了与模型构造相对应的措施。方法:通过综合癌症中心招募的18名乳腺癌妇女完成访谈。对访谈进行了定性框架分析。结果:参与者经历了不同程度的财务困难。保护因素包括良好的健康保险,工作住宿和社会支持。参与者担心癌症护理成本和就业。减轻财政困难的方案有很高的行政负担。制定了四项初步的财政困难措施:应对,影响,抑郁和忧虑结论:减少行政福利障碍可以减少癌症后的财务困难。需要对网络外/处方集护理和拒绝承保的影响进行更多研究,并验证措施。
在癌症诊断后,经济困难很常见。这项研究采访了患有乳腺癌的妇女的经济困难。经济困难包括参与者如何应对医疗保健成本和收入减少。忧虑和沮丧也是财务困难的方面。行政负担导致财政困难。行政负担是患者为获得财政支持而必须采取的行动。这项研究还创建了调查来衡量癌症的财务困难。
这项研究修正了癌症后经济负担的概念模型。从模型中针对每个财务负担维度制定了措施。减少工作住宿和保险的行政障碍可以防止负担。
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