关键词: caregiver burden food hypersensitivity instrument psychometric properties quality of life

Mesh : Humans Quality of Life Food Hypersensitivity / psychology diagnosis Psychometrics / methods Surveys and Questionnaires Consensus Caregivers / psychology Child

来  源:   DOI:10.1111/pai.14165

Abstract:
Food allergies severely impact the health-related quality of life (HRQoL) of patients and their caregivers (family or informal caregivers). Currently there is no comprehensive review to provide an overview and critical assessment of the instruments in the field. Six databases were searched from inception until 10 August 2023, and a combination of subject terms and free words was used to search the literature. We used the COnsensus-based Standards for the selection of health Measurement INstruments methodology (COSMIN) to evaluate the measurement properties of the instruments. Forty-one studies reported on ten eligible instruments. Based on COSMIN guidelines, one instrument was recommended for Grade A, and the remaining nine instruments were recommended for Grade B. The Grade A instrument identified, the Food Allergy Quality of Life Questionnaire-Parent Form (FAQLQ-PF), can help researchers assess the effectiveness of treatment for patients with food allergy and to understand the psychosocial impact of the disease on patients.
摘要:
食物过敏严重影响患者及其照顾者(家庭或非正式照顾者)的健康相关生活质量(HRQoL)。目前没有全面审查来提供对实地工具的概述和批判性评估。从开始到2023年8月10日,共搜索了六个数据库,并使用了主题词和自由词的组合来搜索文献。我们使用基于Consensus的标准选择健康测量指标方法(COSMIN)来评估仪器的测量特性。41项研究报告了10项合格文书。根据COSMIN指南,A级推荐一种仪器,其余九种仪器被推荐用于B级。确定的A级仪器,食物过敏生活质量问卷-家长表格(FAQLQ-PF),可以帮助研究人员评估食物过敏患者的治疗效果,并了解该疾病对患者的社会心理影响。
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