Abstract：
OBJECTIVE: This study aimed to develop a patient-centered survivorship care plan (SCP) for US military Veteran bladder cancer (BC) survivors in accordance with the National Academy of Medicine recommendation that survivors receive an SCP at treatment completion. BC, which differentially impacts older men, is a costly and highly recurrent cancer associated with invasive procedures and long-term surveillance. Veteran BC survivors may face challenges navigating the patient-to-survivor transition due to their age and comorbidities.
METHODS: We conducted 20 one-on-one qualitative interviews and 2 focus groups with Veteran BC survivors to understand their preferences for information and support to inform SCP development. Data were analyzed using rapid analysis.
RESULTS: Participants voiced concerns about BC\'s impact on their psychosocial functioning and quality of life. They suggested information on BC recurrences, recommended surveillance schedules, long-term side effects and healthy living, and how and when to seek help if a medical problem arises should be included on the SCP to help manage expectations and access key resources during survivorship. Although participants had varying needs, many recommended including information on supportive resources (e.g., support groups, peer support programs) to manage cancer-related anxiety. Participants also suggested including Veteran-centered information (e.g., Veterans\' BC risk factors).
CONCLUSIONS: We developed an SCP to help Veteran BC survivors navigate the transition from patient to survivor. Adapting an SCP to address specific needs of the Veteran population was an important step in supporting Veteran BC survivors. Future research should evaluate the potential effectiveness of this SCP at improving Veterans\' health outcomes and healthcare experiences.
METHODS: We conducted 20 one-on-one qualitative interviews and 2 focus groups with Veteran BC survivors to understand their preferences for information and support to inform SCP development. Data were analyzed using rapid analysis.
RESULTS: Participants voiced concerns about BC\'s impact on their psychosocial functioning and quality of life. They suggested information on BC recurrences, recommended surveillance schedules, long-term side effects and healthy living, and how and when to seek help if a medical problem arises should be included on the SCP to help manage expectations and access key resources during survivorship. Although participants had varying needs, many recommended including information on supportive resources (e.g., support groups, peer support programs) to manage cancer-related anxiety. Participants also suggested including Veteran-centered information (e.g., Veterans\' BC risk factors).
CONCLUSIONS: We developed an SCP to help Veteran BC survivors navigate the transition from patient to survivor. Adapting an SCP to address specific needs of the Veteran population was an important step in supporting Veteran BC survivors. Future research should evaluate the potential effectiveness of this SCP at improving Veterans\' health outcomes and healthcare experiences.
摘要：
目的：本研究旨在根据美国国家医学研究院的建议，为美国退伍军人膀胱癌（BC）幸存者制定以患者为中心的生存护理计划（SCP）。BC,这对老年男性有不同的影响，是一种昂贵且高度复发的癌症，与侵入性手术和长期监测有关。由于年龄和合并症，退伍军人BC幸存者可能面临在患者到幸存者过渡过程中的挑战。
方法：我们与退伍军人BC幸存者进行了20次一对一的定性访谈和2个焦点小组，以了解他们对信息和支持以告知SCP发育的偏好。使用快速分析对数据进行分析。
结果：参与者对BC对他们的心理社会功能和生活质量的影响表示担忧。他们提出了BC复发的信息，建议的监测时间表，长期的副作用和健康的生活，以及在出现医疗问题时如何以及何时寻求帮助应包括在SCP中，以帮助管理期望并在生存期间访问关键资源。尽管参与者有不同的需求，许多建议包括有关支持资源的信息(例如，支持团体,同伴支持计划)来管理与癌症相关的焦虑。参与者还建议包括以退伍军人为中心的信息(例如，退伍军人\'BC风险因素)。
结论：我们开发了一个SCP来帮助退伍军人BC幸存者导航从患者到幸存者的过渡。使SCP适应退伍军人人群的特定需求是支持退伍军人BC幸存者的重要一步。未来的研究应评估该SCP在改善退伍军人健康结果和医疗保健经验方面的潜在有效性。
方法：我们与退伍军人BC幸存者进行了20次一对一的定性访谈和2个焦点小组，以了解他们对信息和支持以告知SCP发育的偏好。使用快速分析对数据进行分析。
结果：参与者对BC对他们的心理社会功能和生活质量的影响表示担忧。他们提出了BC复发的信息，建议的监测时间表，长期的副作用和健康的生活，以及在出现医疗问题时如何以及何时寻求帮助应包括在SCP中，以帮助管理期望并在生存期间访问关键资源。尽管参与者有不同的需求，许多建议包括有关支持资源的信息(例如，支持团体,同伴支持计划)来管理与癌症相关的焦虑。参与者还建议包括以退伍军人为中心的信息(例如，退伍军人\'BC风险因素)。
结论：我们开发了一个SCP来帮助退伍军人BC幸存者导航从患者到幸存者的过渡。使SCP适应退伍军人人群的特定需求是支持退伍军人BC幸存者的重要一步。未来的研究应评估该SCP在改善退伍军人健康结果和医疗保健经验方面的潜在有效性。
