METHODS: We conducted 20 one-on-one qualitative interviews and 2 focus groups with Veteran BC survivors to understand their preferences for information and support to inform SCP development. Data were analyzed using rapid analysis.
RESULTS: Participants voiced concerns about BC\'s impact on their psychosocial functioning and quality of life. They suggested information on BC recurrences, recommended surveillance schedules, long-term side effects and healthy living, and how and when to seek help if a medical problem arises should be included on the SCP to help manage expectations and access key resources during survivorship. Although participants had varying needs, many recommended including information on supportive resources (e.g., support groups, peer support programs) to manage cancer-related anxiety. Participants also suggested including Veteran-centered information (e.g., Veterans\' BC risk factors).
CONCLUSIONS: We developed an SCP to help Veteran BC survivors navigate the transition from patient to survivor. Adapting an SCP to address specific needs of the Veteran population was an important step in supporting Veteran BC survivors. Future research should evaluate the potential effectiveness of this SCP at improving Veterans\' health outcomes and healthcare experiences.
方法:我们与退伍军人BC幸存者进行了20次一对一的定性访谈和2个焦点小组,以了解他们对信息和支持以告知SCP发育的偏好。使用快速分析对数据进行分析。
结果:参与者对BC对他们的心理社会功能和生活质量的影响表示担忧。他们提出了BC复发的信息,建议的监测时间表,长期的副作用和健康的生活,以及在出现医疗问题时如何以及何时寻求帮助应包括在SCP中,以帮助管理期望并在生存期间访问关键资源。尽管参与者有不同的需求,许多建议包括有关支持资源的信息(例如,支持团体,同伴支持计划)来管理与癌症相关的焦虑。参与者还建议包括以退伍军人为中心的信息(例如,退伍军人\'BC风险因素)。
结论:我们开发了一个SCP来帮助退伍军人BC幸存者导航从患者到幸存者的过渡。使SCP适应退伍军人人群的特定需求是支持退伍军人BC幸存者的重要一步。未来的研究应评估该SCP在改善退伍军人健康结果和医疗保健经验方面的潜在有效性。