Abstract:
Background: An essential component of residential hospice care is the provision of high quality palliative care. The perspectives of quality of care from palliative care patients and bereaved caregivers have increasingly been studied to guide quality improvements. Aim: The study aimed to explore the experiences and perceptions of bereaved caregivers of patients who died in residential hospice during the coronavirus disease-19 (COVID-19) pandemic to determine perceptions of quality of care, caregiver grief and bereavement, and the impact of the COVID-19 pandemic. Design: Qualitative exploratory study using secure, web-based semistructured interviews. Data were analyzed using thematic analysis. Setting/Participants: A total of 15 bereaved caregiver participants were recruited from two residential hospice sites in Ottawa, Ontario. Results: Participants identified several factors that impacted the quality of care in residential hospice, including the impact of the COVID-19 pandemic itself. The findings are presented in three main themes: (1) quality of residential hospice end-of-life care; (2) caregiver perceptions of their grief and bereavement; and (3) impact of the COVID-19 pandemic on hospice quality of care and caregiver bereavement. Conclusions: The COVID-19 pandemic had a significant impact on the patient and caregivers experience of hospice, including perception of quality of care and caregiver experience of grief and bereavement.
摘要:
背景:住宿临终关怀护理的重要组成部分是提供高质量的姑息治疗。越来越多地研究姑息治疗患者和失去亲人的护理人员的护理质量观点,以指导质量改进。目的:该研究旨在探索在冠状病毒病-19(COVID-19)大流行期间在居家临终关怀中死亡的患者的丧亲照顾者的经历和看法,以确定对护理质量的看法,照顾者的悲伤和丧亲,以及COVID-19大流行的影响。设计:使用安全的定性探索性研究,基于网络的半结构化访谈。采用专题分析法对数据进行分析。设置/参与者:从渥太华的两个住宿收容所招募了15名失去亲人的护理人员参与者,安大略省。结果:参与者确定了影响住宿临终关怀护理质量的几个因素,包括COVID-19大流行本身的影响。研究结果分为三个主要主题:(1)居家临终关怀护理的质量;(2)护理人员对他们悲伤和丧亲的看法;(3)COVID-19大流行对临终关怀护理质量和护理人员丧亲的影响。结论:COVID-19大流行对临终关怀患者和护理人员的体验产生了重大影响,包括对护理质量的感知以及照顾者对悲伤和丧亲的体验。