关键词: ABCC-tool Burden of disease Osteoarthritis Patient reported outcome measures Patient-centered care Shared-decision making

来  源:   DOI:10.1016/j.ocarto.2024.100488   PDF(Pubmed)

Abstract:
UNASSIGNED: Osteoarthritis (OA) care should be more person-centered based on physical, emotional and social aspects, instead of the current stepped-care approach solely based on physical symptoms, according to OA patients. By developing a novel module for OA in the Assessment of Burden of Chronic Condition (ABCC)-tool, a tool based on these three aspects, experienced quality of OA care and shared-decision making are expected to improve.
UNASSIGNED: The development of the novel OA module involved a triangular iterative process, interviewing OA patients and healthcare professionals in the field of OA, an expert panel and a literature search to identify the needs to improve OA care. Patients provided feedback on the first version of the OA module, leading to a second version. This second version was used to evaluate content validity. OA patients and healthcare professionals in the field of OA were asked to evaluate relevance, comprehensiveness and comprehensibility, based on the COSMIN methodology. For healthcare professionals, the item-content validity index (I-CVI) was calculated.
UNASSIGNED: The module includes questions about pain, kinesiophobia and joint stiffness. For all three questions, 94% of the patients found these questions important for patients with OA. The I-CVI scores of the healthcare professionals ranged from 1.0 (pain, kinesiophobia) to 0.75 (joint stiffness).
UNASSIGNED: A novel, condition-specific OA module is developed for the ABCC-tool, as a supplement to the generic questions. The module includes three questions, to measure OA specific complaints. This novel module is intended to make the ABCC-tool more elaborate and useable for a larger population.
摘要:
骨关节炎(OA)的护理应更加以身体为中心,情感和社会方面,而不是目前仅基于身体症状的阶梯式护理方法,根据OA患者。通过开发一种用于评估慢性疾病负担(ABCC)工具的新型OA模块,基于这三个方面的工具,经验丰富的OA护理质量和共同决策有望提高。
新型OA模块的开发涉及三角迭代过程,采访OA患者和OA领域的医疗保健专业人员,专家小组和文献检索,以确定改善OA护理的需求。患者对OA模块的第一个版本提供了反馈,导致第二个版本。第二个版本用于评估内容的有效性。OA患者和OA领域的医疗保健专业人员被要求评估相关性,全面性和可理解性,基于COSMIN方法论。对于医疗保健专业人员,计算项目内容有效性指数(I-CVI)。
该模块包括有关疼痛的问题,运动障碍和关节僵硬。对于所有三个问题,94%的患者发现这些问题对OA患者很重要。医疗保健专业人员的I-CVI评分范围为1.0(疼痛,运动恐惧症)至0.75(关节刚度)。
小说,针对ABCC工具开发了特定条件的OA模块,作为一般性问题的补充。该模块包括三个问题,衡量OA的具体投诉。这个新颖的模块旨在使ABCC工具更加复杂,可用于更多的人群。
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