关键词: Cancer Caregiving Needs Qualitative study

Mesh : Humans Caregivers / psychology Neoplasms / psychology Qualitative Research Male Female Middle Aged Adult Iran Interviews as Topic Aged Communication

来  源:   DOI:10.1007/s00520-024-08575-3

Abstract:
OBJECTIVE: Family caregivers play a critical role in providing care for patients with cancer. However, the quality of their caregiving can be greatly impacted if the demands and expectations they experience are not identified. Therefore, this study aimed to explore the demands and perceived expectations of caregivers while caring for cancer patients.
METHODS: This qualitative study was conducted from June 2022 to September 2023. Face-to-face and in-depth semi-structured interviews were conducted to collect the experiences of 19 Iranian family caregivers of patients with cancer. Purposive sampling was used to select the participants. The interviews were analyzed using conventional content analysis and the rigor of the study was ensured by employing Lincoln and Guba\'s criteria.
RESULTS: Three main themes and six subthemes were identified through data analysis. The themes that emerged from the caregivers\' experiences included the following: (1) ambiguity in the healthcare system, (2) need for empathetic communication, and (3) forgotten caregivers in the healthcare system.
CONCLUSIONS: Caregivers often feel overlooked, resulting in unfulfilled needs and expectations. It is imperative to explore potential solutions that provide caregivers information, empathetic communication, and support. Nurses, as key members of the healthcare team, should play a significant role in addressing this problem.
摘要:
目的:家庭护理人员在为癌症患者提供护理方面发挥着关键作用。然而,如果不确定他们的需求和期望,他们的护理质量可能会受到很大影响。因此,这项研究旨在探讨照顾癌症患者时照顾者的需求和感知期望。
方法:这项定性研究于2022年6月至2023年9月进行。进行了面对面和深入的半结构化访谈,以收集19名伊朗癌症患者家庭照顾者的经验。目的抽样用于选择参与者。使用常规的内容分析对访谈进行了分析,并通过采用Lincoln和Guba\的标准确保了研究的严谨性。
结果:通过数据分析确定了三个主要主题和六个子主题。从护理人员的经验中出现的主题包括:(1)医疗保健系统中的歧义,(2)需要善解人意的沟通,(3)医疗保健系统中被遗忘的护理人员。
结论:看护者经常感到被忽视,导致无法满足的需求和期望。必须探索提供护理人员信息的潜在解决方案,移情沟通,和支持。护士,作为医疗团队的关键成员,应该在解决这个问题上发挥重要作用。
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