关键词: Breast cancer Breast reconstruction Decision making Flat closure Mastectomy Patient experience Thematic analysis

Mesh : Humans Female Breast Neoplasms Middle Aged Adult Aged Interviews as Topic Qualitative Research Decision Making Decision Making, Shared

来  源:   DOI:10.1016/j.ejon.2024.102613

Abstract:
OBJECTIVE: The purpose of this study was to explore women\'s experiences with healthcare providers previous to a flat closure after breast cancer.
METHODS: Data was collected using individual semi-structured interviews by telephone or teleconferencing systems with 18 women who shared their experience with health care before and during flat closure operation after breast cancer or a breast gene mutation. The interviews were transcribed verbatim and analyzed using thematic analysis.
RESULTS: The analysis generated three specific themes: (1) Striving to be recognized as a person, (2) Barriers to shared decision making and (3) A need to be empowered, indicating that women\'s views are not always illuminated and enquired about by health care providers. The care agenda was also more often regulated by norms and standard care than the individual women\'s intended goals. Furthermore, when the agenda for surgery had been previously set, the women were not presented with viable options to choose from for the upcoming surgery. For these women to influence the reality they face, they have to seek support outside of healthcare. This indicates the important role of patient networks and relatives in empowering the individual women to stand up for their choice and body.
CONCLUSIONS: In order to offer feasible surgery for women diagnosed with breast cancer or a breast mutation gene, the women\'s wishes regarding flat closure and what matters to her in her life must be identified. Also emphasized is the need for a more systematic approach in involving the affected women in shared decision-making.
摘要:
目的:本研究的目的是探讨女性在乳腺癌后平开术前在医疗服务提供者中的经验。
方法:通过电话或电话会议系统对18名女性进行个人半结构化访谈,收集数据,这些女性在乳腺癌或乳腺基因突变后进行平面闭合手术之前和期间分享了她们在医疗保健方面的经验。访谈被逐字转录,并使用主题分析进行分析。
结果:分析产生了三个特定主题:(1)努力被认可为一个人,(2)共同决策的障碍;(3)需要授权,表明妇女的观点并不总是被医疗保健提供者阐明和询问。与女性个人的预期目标相比,护理议程也更多地受到规范和标准护理的约束。此外,当手术议程已经确定时,对于即将进行的手术,这些女性没有提供可行的选择.为了让这些女性影响她们面临的现实,他们必须在医疗保健之外寻求支持。这表明患者网络和亲属在赋予妇女个人捍卫自己的选择和身体方面的重要作用。
结论:为了为被诊断患有乳腺癌或乳腺突变基因的女性提供可行的手术,必须确定妇女关于平房关闭的愿望以及对她生命中重要的事情。还强调需要采取更系统的方法让受影响的妇女参与共同决策。
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