Abstract：
At present, there is no internationally accepted set of core outcomes or measurement methods for epilepsy clinical practice. The International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group of experts in epilepsy, people with epilepsy, and their representatives to develop minimum sets of standardized outcomes and outcome measurement methods for clinical practice. Using modified Delphi consensus methods with consecutive rounds of online voting over 12 months, a core set of outcomes and corresponding measurement tool packages to capture the outcomes were identified for infants, children, and adolescents with epilepsy. Consensus methods identified 20 core outcomes. In addition to the outcomes identified for the ICHOM Epilepsy adult standard set, behavioral, motor, and cognitive/language development outcomes were voted as essential for all infants and children with epilepsy. The proposed set of outcomes and measurement methods will facilitate the implementation of the use of patient-centered outcomes in daily practice.
摘要：
目前,对于癫痫的临床实践,目前尚无一套国际公认的核心结局或测量方法.国际健康结果测量协会（ICHOM）召集了一个国际癫痫专家工作组，癫痫患者，和他们的代表为临床实践制定最低限度的标准化结果和结果测量方法。使用改进的德尔菲共识方法，连续进行12个月的在线投票，确定了一组核心结果和相应的测量工具包，以捕获婴儿的结果，孩子们,和患有癫痫的青少年。共识方法确定了20个核心成果。除了ICHOM癫痫成人标准集确定的结果外，行为，电机,认知/语言发育结局被认为是所有癫痫婴儿和儿童必不可少的结局.拟议的一组结果和测量方法将有助于在日常实践中实施以患者为中心的结果。
