关键词: adulthood autism autonomy choice opportunity qualitative self-determination support

来  源:   DOI:10.1177/13623613241254432

Abstract:
UNASSIGNED: Autistic young adults with intellectual disabilities want to be autonomous but are less autonomous than other people. However, they can be autonomous with appropriate support. We wanted to learn how we can support autistic adults with intellectual disabilities to be more autonomous. We designed our study with help from five autistic community partners to make sure the research was relevant to autistic people and would improve their lives. We talked with eight autistic young adults with intellectual disabilities about autonomy. We defined \"talk\" as verbal language, as well as non-verbal cues such as body language, facial expressions, vocalizations, and laughter. We did art projects and played games while we talked. We met in small groups over multiple sessions. Our participants told us that being autonomous meant being able to be themselves. They told us three main ways to support their autonomy: (1) having choice and control, (2) being able to communicate in their own way, and (3) being in a safe environment. Families, support staff, and caregivers can use this information to help autistic young adults with intellectual disabilities to be autonomous.
摘要:
患有智力障碍的自闭症年轻人想要自主,但不如其他人自主。然而,他们可以在适当的支持下自主。我们想学习如何支持患有智力障碍的自闭症成年人变得更加自主。我们在五个自闭症社区合作伙伴的帮助下设计了我们的研究,以确保这项研究与自闭症患者相关,并改善他们的生活。我们与8名患有智力障碍的自闭症年轻人讨论了自主性。我们将“谈话”定义为口头语言,以及肢体语言等非语言暗示,面部表情,发声,和笑声。我们在聊天的时候做艺术项目和玩游戏。我们在多个会议上分成小组。我们的参与者告诉我们,自主意味着能够做自己。他们告诉我们三种主要方式来支持他们的自主权:(1)有选择和控制,(2)能够以自己的方式进行交流,(3)在安全的环境中。家庭,支持人员,和照顾者可以使用这些信息来帮助自闭症青少年智障人士自主。
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